Don't know if you all noticed the Sept 13th gathering of the WI BPI's. This is about 5 min from our house. If anyone is wanting to come but thinking it would be too much travel for one day, we have a lot of floor space. We also have a large yard and you could set up tents, heck I think we could get about 4 campers in the drive. So,if your interested but would like to spend a night please e-mail me. Just be aware that you need to make yourself at home. We live on the lake here so there would be swimming (bring your water shoes). Thought this might make it possible for others that may live in surrounding states to make it too.
Sue
WI BPI Gathering-you're all invited
Re: WI BPI Gathering-you're all invited
what state is the gathering in?
Joseph's mama
Joseph's mama
Re: WI BPI Gathering-you're all invited
Wisconsin
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: WI BPI Gathering-you're all invited
Sue, you are an Angel!! What an offer! I hope you're swamped with reqauests!!! You GO Wisconsin!! 
HUgs all around,
Carolyn J
LOBPI adult
HUgs all around,
Carolyn J
LOBPI adult
Carolyn J
Adult LOBPI
Adult LOBPI
Re: WI BPI Gathering-you're all invited
YAY
I hope evereyone comes!!!!!
I hope evereyone comes!!!!!
-
Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: WI BPI Gathering-you're all invited
You can register for the event on: http://wbpicgathering.eventbrite.com/
Hope to see you there!
Brenda
Hope to see you there!
Brenda
Re: WI BPI Gathering-you're all invited
Woowhoo!! It's this coming weekend. We can bring Dustin's biofeedback if anyone wants to try it. Looking forward to meeting everyone.
Sue
Sue