Amputation Question

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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CL's Mom
Posts: 4
Joined: Thu Jul 31, 2008 5:14 pm

Amputation Question

Post by CL's Mom »

Hi everyone,

It's been a while since I visited. In Feb. 2006, my son Chris had BPI reconstructive surgery at Mayo Clinic. He is still in very much pain...he believes mostly due to the weight of his arm. The surgery just did not accomplish what we thought it would. He wants to amputate and just can't make that final decision. Is there anyone here who has amputated an arm after a BPI injury? Chris' quality of life if horrible and we believe if he amputates he will be able to things he can't do now because of the cumberson task of caring for his arm. He really needs to talk to someone who has amputated before making this decision. Please contact me via email or phone. imsand777@aol.com or 770-318-2834
Thank you inadvance...we really need to hear from someone.
Angie
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Amputation Question

Post by marieke »

Try posting on the TBPI board too.. more likely to get a response there.

Good luck,
Marieke 32, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
CL's Mom
Posts: 4
Joined: Thu Jul 31, 2008 5:14 pm

Re: Amputation Question

Post by CL's Mom »

Thank you...do yo have the url for that message board?
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Amputation Question

Post by katep »

Here it is: http://ubpn.org/messageboard/forum.jspa?forumID=18

I hope you find the information/help you are looking for there. I'm sorry you and Chris are having to go through this.

Kate
s8n
Posts: 223
Joined: Wed Jun 04, 2008 11:51 am

Re: Amputation Question

Post by s8n »

another out is dans slings only thing is they are custom made how old is he i mean hell grow out of em if hes growin but its just 100 bucks a sling maybe you can get your ins to foot the bill but these slings are wonderful i felt the difference first time i put it on.dan is a great guy he's been like this 20 years.he not only sold me the sling he called and talked to me and he is such an inspiring person.but the sling is key.it takes the hanging pain off him and he'll feel like a new person i promise.i thought about amputation but i'm kinda attached to my arm.plus all of em say even when the arms gone the pain stays.but the sling really works and i stand 100 percent behind this claim.i think everyone that needs a sling must get one of these.so look up dan on the tbpi board i swear he will be a godsend.
s8n

oh and ps:this sling is the closest to amputation without getting it that is why i bought one i will be dan commercial this thing rocks
Message was edited by: s8n
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