Mod Quad in OBPI adults....

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Mod Quad in OBPI adults....

Post by veggiebug »

O.k. I checked back to old posts and saw lots of people that had it. I guess my question is now that time has passed "Are you still pleased by the results?"

I CAN'T BELIEVE I would ever ever consider this, I just don't know if it's worth the chance. Not that it's bad if I stay the same at least I tried and maybe just maybe for a brief moment I'd know more movement than I ever thought possible.

What are the benefits besides movement? Does it lessen pain and tightness in back/shoulder area? I guess I have A LOT of research to do if I'm even considering this crazy idea. If all I gain is movement, or if the results don't last is it even worth going through?

-Traci
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Mod Quad in OBPI adults....

Post by marieke »

I had the modified Mod Quad (not called this where I had it done, this is just Dr Nath who calls it that I think).

They did the Lat Dorsi and Teres Major tendons.

It was mostly to gain more external rotation and overhead.. I did not get overhead, but went from 160 degrees forward flexion to 175, so I gained some. ER I gained another 35-40 degrees with 90 degree flexion at the elbow, I went from 35 degrees to 70-75.

I was 14 (nearly 15) at the time, so not quite an adult, but "old" for this operation. It was worth it a I gained quite a bit of new active movement, it also allowed my arm to "hang" more naturally at my side. I was limited in how much movement I would get as I am subluxated and the shoulder joint is malformed.

Was it worth all the PT (3 years)? Yes. I would do more NOW if I could (surgery). If I knew of one that would help more. But it is a lot of time/commitment.

Marieke 32, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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