BPI Family Gathering

You are welcome to post information here about planned BPI picnics, gatherings and symposia.
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
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Location: Wisconsin
Contact:

BPI Family Gathering

Post by Brenda333 »

Just wanted to let you know. We are going to try and set up a BPI Family Gathering for Saturday, September 13, 2008. We will be looking into Hotels in this area. Would love it if you were able to come. Are you interested? Let us know what you think.

If you received this as a duplicate. Please forgive me, we are trying to make sure we don't miss anyone.

Brenda Moore
Wisconsin BPI Connection
P.O. Box 23
Larsen, WI 54947
http://www.freewebs.com/wbpic
Brenda
BPI Connection
http://www.freewebs.com/wbpic
User avatar
Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Re: BPI Family Gathering

Post by Brenda333 »

Sorry, forgot the e-mail address.
erbspalsy1@gmail.com
Brenda
BPI Connection
http://www.freewebs.com/wbpic
User avatar
Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Re: BPI Family Gathering

Post by Brenda333 »

Calling a head count. Meeting with Hotel in Neenah tomorrow. Looking at September 13, 12.00. Lunch provided. You can contact me at erbspalsy1@gmail.com

Sincerely,
Brenda
Wisconsin BPI Connection
erbspalsy1@gmail.com
P.O. Box 23
Larsen, WI 54947
Brenda
BPI Connection
http://www.freewebs.com/wbpic
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