Meltdown like no other! HELP! Any suggestions??

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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GAmom
Posts: 186
Joined: Wed May 04, 2005 11:20 am

Meltdown like no other! HELP! Any suggestions??

Post by GAmom »

Hey all, last night the Fam went out to eat. Which is not unusual but it was like no other time before as to what happened. We sat down at our table ordered. It was a little chilly in the restaurant but not to cold. Well Brayden just had a complete meltdown when his food got to the table. He kept hollaring I am cold,I can't eat. I am freezing. So we asked our server if they could cut the air off. So they did but he kept saying I am cold. And he didn't eat enough for a bird to survive. And on the way home from work he was starving, we went straight to the restaurant after picking up daddy. So he had to still be hungry. But he just had a complete meltdown. Hollaring, couldn't seem to sit in his seat or be still. I am not sure what was going on. He has never acted this way. However I have noticed him complain of being cold often, he wears winter pajamas to bed almost every night, and he hates having tags in his clothes. With school coming up I am afraid it might happen again. And I don't want him to be labeled as a disruptive child. We have gone through that before. That is when we removed him from public school and put him in a private one. And didn't have trouble after that. I know some where I read about a sensory issue. I am not sure if he may be having trouble but like I said this is the frist time he has had a meltdown. Any suggestion would be great. School starts in 2 weeks and I would like to let his teacher know that the meltdown could be possible again and how they could help. I just don't know. He ges back to the doctor in August so I guess I will discuss it with him. I just hate to if it is a one time thing. Please let me know if anyone has experienced this before and any suggestions. ???? Thanks!

Ashley, mom to Brayden ROPBI 5yrs
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Meltdown like no other! HELP! Any suggestions??

Post by Kath »

It sounds like sensory issues to me. My right obpi arm is always freezing and when it gets too cold it's painful. I can't have a tag at all and sometimes clothes I've worn before I just can't put on. I don't know what it is but all of a sudden I am uncomfortable and change my clothing until I can find something very big and loose. When I sleep my arm often wakes me up if it's not covered and I have an extra soft blanket on it. I know it's hard on the parents but it's hard on the kids when these things happen. He probably could not focus on his food because his arm may have had pain from the cold. I was in PT and they put ice on my arm and in two minutes it brought me to tears. I am not a cry baby nor one who cries easy but that was so painful. I had never had ice on my robpi arm before so I had no way of knowing it would be painful.
Check the Sensory posts they will help you understand better. Also the smell of some restaurants could make me loose my appetite when I was younger. I still can't stand the smell of food after I eat. I have to clear the food off the table.... I'm so much better now.
Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Meltdown like no other! HELP! Any suggestions??

Post by brandonsmom »

Sounds right on to me Kath,
Brandon has done the same thing. It is embarrassing sometimes, but people just have to understand !!!
GAYLE
Jordansmom
Posts: 37
Joined: Mon Oct 03, 2005 1:54 pm

Re: Meltdown like no other! HELP! Any suggestions??

Post by Jordansmom »

Whichever arm Jordan's BPI is affected (he has had PTS twice)is cold and hurtful to the touch at times. Someone once explained it to me as the feeling of a nerve exposed from a Root Canal. I think a bit of understanding on the school's part is in order. NO ONE knows what our kids go through unless they have sat in their shoes!!! Sending you good, supportive vibes~~~~~~~~~~~~
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Meltdown like no other! HELP! Any suggestions??

Post by Carolyn J »

I Bumped up Sensory Intergration Dysfunction posts for you. I hope it helps, Ashley.

HUGS,
Carolyn J
LOBPI adult
Carolyn J
Adult LOBPI
AK1999
Posts: 80
Joined: Mon Nov 05, 2001 1:47 am

Re: Meltdown like no other! HELP! Any suggestions??

Post by AK1999 »

Both my kids BP and non BP had me cutoff all the tags in their clothes at that age.

Little kids get tired. My soon to be 5 year old (non bpi) likes restaurants one day and then the next time it is a new story.

Kids pick up on all our anxiety. I know I have affected my 9 year old BP kid with my anxiousness and anxiety over the years.

Just a warning to parents, kids are sensitive to our reactions to them.
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