St. Louis Support Group

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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mamaofsix
Posts: 214
Joined: Sun May 11, 2008 5:20 pm
Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.

St. Louis Support Group

Post by mamaofsix »

Hello all.

I have started a St. Louis support group for families that live in or around STL, or even come into St. Louis for care for their BPI's. If you are interested in becoming a part of this group, please email me at stlbpi@yahoo.com for more details!
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mommieinneed
Posts: 181
Joined: Thu Jun 14, 2007 6:19 pm

Re: St. Louis Support Group

Post by mommieinneed »

We will try to be involved. We live in IL, but we come to St Louis at least once a year to the drs and twice a year we go to six flags.

Maybe we could get together sometime. If I dont get to your email my email is mommieinneed@aol.com if you would like to get ahold of us too.
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Chloesmom
Posts: 53
Joined: Tue Apr 19, 2005 2:56 pm

Re: St. Louis Support Group

Post by Chloesmom »

I'm in central Illinois however would be interested in a support group. My email is Mollielizzy@yahoo.com
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mommieinneed
Posts: 181
Joined: Thu Jun 14, 2007 6:19 pm

Re: St. Louis Support Group

Post by mommieinneed »

If you dont mind me asking where in central IL are you located.
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Chloesmom
Posts: 53
Joined: Tue Apr 19, 2005 2:56 pm

Re: St. Louis Support Group

Post by Chloesmom »

I'm in Springfield
Where are you?
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bfaithda
Posts: 88
Joined: Fri Jul 20, 2007 10:40 pm
Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
Location: Owensboro, KY

Re: St. Louis Support Group

Post by bfaithda »

I would love to be apart of this!! We live in Kentucky a 4 hour drive from St. Louis We were just there in the begining of June. My email address is bfaithda@yahoo.com
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mommieinneed
Posts: 181
Joined: Thu Jun 14, 2007 6:19 pm

Re: St. Louis Support Group

Post by mommieinneed »

wow Chloesmom not far from us at all. We live in Pekin. Maybe we could get together sometime to meet and talk.
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