mayofascial release

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Nikki
Posts: 18
Joined: Sun Jun 01, 2008 12:21 am

mayofascial release

Post by Nikki »

we had our first eval today about mayofascial release for taylor our 4 yr old daughter lobpi and i was wondering if anyone hhad trouble getting their kid to relax long enough.i think we will benifit and we do have to get to know the therapist b/c he's not our reg ot. he said she's really tight in the neck and that we neeed to start back our scar massage. any suggestions? does once a week sound like it would be benificial?
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: mayofascial release

Post by F-Litz »

try planning this visit around naptime if possible
Mare
Posts: 708
Joined: Mon Mar 10, 2003 5:30 pm

Re: mayofascial release

Post by Mare »

Nikki
I tried the mayofascial release for Frankie when he was young due to tightness in his neck he hated it said it hurt so we went to a chiro that used the activator (never let one manually adjust) and this really helped he went twice a week for about 6 weeks then only when he had pain. At 13 he had the mod quad because his neck and shoulder was so tight it was pulling his shoulder up to his ear this worked and now he is very loose and his shoulders are even. If the massage doesn't work try the chiro. Mare
mommieinneed
Posts: 181
Joined: Thu Jun 14, 2007 6:19 pm

Re: mayofascial release

Post by mommieinneed »

We tried mayofacial release on Maggie and she had big ol aligator tears. She was in so much pain, so we stopped that we will have to try the chiro, but she is so scared of new things I dont know how she will react with that. I guess we will see.
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: mayofascial release

Post by F-Litz »

about MFR..... this is a very serious modality....you have to go to someone who does this a lot and understands it on a deeper level. If it is not done correctly you can cause pain and a lock-up. So please ask - how much training did they have - how often do they do it, have they done it on children with neuromuscular issues and more and then have them do it on you and see what your response is.

And also, have the practitioner do it on you... not just a 10 second try out- but a real treatment. Everyone has tight neck and shoulders - If you have good results, if you like the practiioner's demeanor and attitude and touch - then it's probably a good fit for your child.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: mayofascial release

Post by Kath »

I was so lucky, I need to go back now for some treatments. I never knew that it could cause pain because I got so so much relief.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: mayofascial release

Post by marieke »

I've tried it too and it hurt too much, I gave up. I am hypersensitive in some areas and so forget it!
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: mayofascial release

Post by F-Litz »

Kath - I recently dislocated my shoulder and I felt that I needed MFR work to help loosen up my neck from all the compensation. A neighbor who is an OT and went to the same shiatsu school I went to (so she was trained in MFR but hardly ever does it) worked on me but took it too far too fast and the next day I was in a complete lock up. It took 1 1/2 weeks to undo the damage from the overstretching and it was extremely painful. It's just important to know how far to take it and not to do too much in one session. It was scary bad.
Jmarcellus
Posts: 17
Joined: Mon May 30, 2005 8:13 pm
Injury Description, Date, extent, surgical intervention etc: Daughter with ROBPI 5/8/2002. forceps delivery. Avulsion: C4, C6, C7, Rupture: C5, stretch C8. Diaphragm paralyzed so had plication done at 7 weeks. Nerve graft done at Tx Childrens (Dr Nath) at 3 months. Mod Quad (Dr Nath) at 18 months. Sensation loss especially along ulnar nerve. Grasp ok, no finger extension, pronation, or wrist flexion. We use biofeedback/estim and TES unit. As well as a benik wrist splint for positioning. Myofascial Release therapy has helped a lot with tightness and blockages (2x/mth).
Location: Rochester, NY

Re: mayofascial release

Post by Jmarcellus »

My daughter, ROBPI (age 6)has been seeing a MFR specialist for a couple of years. She has had 4 surgeries so there is quite a lot of scar tissue in the neck, shoulder and arm pit. He is trained in the John Barnes Method of Myofascial Release. He is gentle to the point where she often falls asleep during the 30 minute session. If it does hurt, she tells him and he lightens his touch. We notice immediate improvement using biofeedback once she has seen him. We have visits 2-3 times a month.
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