I just happened to be glancing through some info on here and noticed that it mentioned Tortacollis as being another bpi. Is this true?
My 6 month old son was just diagnosed with it. He's been seing a PT for it. Is he going to run into the same problems as an adult as I am running into now?
His twin sister doesn't have it.
Tortacollis = BPI?
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Kath
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- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Tortacollis = BPI?
I'm not a doctor but I have heard of many children having torticollis without being bpi injured.
My daughter has a friend and three of her four children had to have PT because of it.
Kath
My daughter has a friend and three of her four children had to have PT because of it.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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admin
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Re: Tortacollis = BPI?
You can have torticollis without bpi and you can have bpi without torticollis. Torticollis is a shortening of the muscles in the neck (mostly from disuse but could be other reasons as well). With correct stretching and exercise it can be worked out. My infant had torticollis. We did exercises. I moved things to the other side of the crib so she would look at the other side more. I played music on that side. It went away within six months. You have to work on it when you notice it, you don't want a permanent shortening.
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admin
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Re: Tortacollis = BPI?
Torticollis is not uncommon without Erb's Palsy present and it isn't uncommon to happen to a child with Erb's Palsy. I have some brief information on torticollis on my Web site if you want to look that over. I also have some great links for more detailed information on torticollis there as well.
It's at the bottom of the home page:
http://www.ctepbpicircle.com
~Krista~
It's at the bottom of the home page:
http://www.ctepbpicircle.com
~Krista~
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admin
- Site Admin
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Re: Tortacollis = BPI?
Thanks. I don't think that his is bpi related. We do our pt everyday though it's a fight. I just had never heard that it was related in some cases. I know the PT said if we work on it it should go away. I sure hope so.
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BIGJAVSMOM
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Re: Tortacollis = BPI?
My older son was diagnosed and treated for torticollis when he was a few months old. I was told that his happened from a congenital cyst. or something like that. we just had to do exercises everyday, and thankfully he was fine after about 10 weeks.
Marlyn
Marlyn
Re: Tortacollis = BPI?
What is bpi? My daughter was diagnosed with deformational plagiocephaly as well as tortacollis. We knew about the minor case of tortacollis when she was 2 months and thought that it was completly gone when she was 4 months. She is now 7 months old and we just found out that she still has a minor case of it. I'm trying to do all the research I can to find out more about this condition. We have been to 2 different specialist and they said different things. I have also spoke with a pt and she said something different as well. This is frusterating and confusing. Where can I find the right info?
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Tortacollis = BPI?
BPI is Brachial Plexus Injury, what these message boards are for actually.
I hope you find the info you need concerning torticollis.
Marieke, 32 LOBPI
I hope you find the info you need concerning torticollis.
Marieke, 32 LOBPI
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Carolyn J
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- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Tortacollis = BPI?
Tortacollis is also present in varities of Cerebral Palsy ie Stephen Hawking the briliant scientist. We BPI-er's can also have a variety of both BPI & CP.I am 1 of those. There are so many common medical issues also.
Carolyn J
LOBPI/CP
Message was edited by: Carolyn J
Carolyn J
LOBPI/CP
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: Tortacollis = BPI?
My son had Tortacollis along with his BPI injury. As a result we had to add neck exercises with his arm exercise for the first several months. He also had to wear a helmet to re-shape his head because he kept his head to one side his head was not shaping correctly. Now he is 1 and has no problem turning his head to either side. He wore his helmet for 3 months and his head looks good. I think a severe injury of BPI can result having Tortacollis in the neck. My son injury is very severe.