Camp 2009

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
User avatar
Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: Camp 2009

Post by Tanya in NY »

What about some alternative topic sessions with some speakers like massage, acupuncture, reflexology, Feldenkrais Method, Reiki, and so on. These would be topics for adults and parents alike to attend, whether OBPI or TBPI. Those who have utilized such methods could offer information for those just starting to look into the area of interest, along with having speakers who have knowledge in the area would be great.

Last year's camp was our first time attending, and I know that we found a lot of great things for us. I can completely understand how adults need to have the same content geared toward them, and they deserve that time as well.

I personally got a lot out of the aquatic session and all the group discussions, especially when there was time to ask the adults questions that were weighing on our minds as parents. Even though time is needed in separate forums, I think there still needs to be time for forums such as this as well.

Just my suggestion.

Tanya in NY
Amber's Mom, ROBPI, 5 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Camp 2009

Post by patpxc »

I would like someone who could show us how to deal with the emothional issues. Old baggage. Frustration. I just quit my full time job bacause of the pain from arthritis and carpal tunnel and pronator syndrome. I really resent having to do that. My family still doesn't get it. I want someone who can give me good coping mechanisms.
Thanks
Pat
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Camp 2009

Post by Carolyn J »

Pat,
I have not talked to any adult with OBPI without
Emotional baggage of one kind or another. I, myself "stuffed" so much emotional and physical pain I still have "flasbacks" at times; now I have knowledge and validation of physical pain (that I was always told was all in my head &just ignore it.)from everyone here in our UBPN Family. Healing has come with sharing, our dark humor, and knowing I am not the only one with these injuries. Yes, yes, I do agree it would help us to have a session on dealing with our emotional baggage.

I can't wait to meet you. I hope a gathering of adult happens in Ohio area this summer.

HUGS,
Carolyn J
LOBPI/69
Carolyn J
Adult LOBPI
rachelcasa
Posts: 729
Joined: Mon Apr 21, 2003 11:45 pm

Re: Camp 2009

Post by rachelcasa »

Well, I am a late comer here and not even sure if I can attend camp 2009 or not.

I would like to see more of the secondary issues addressed. How to relieve pain without having to pay an arm and a leg or without prescription drugs.

I love the idea about reiki. I think that is how you spell it. I don't know much about it but have heard good things. I have also been hearing a lot about how reflexology can help a person. Just food for thought.

I do however enjoy the sessions we have with the younger kids. It is so great as an adult; who never had anyone to ask questions; to be able to help the kids understand their injury and how they can emotionally handle it.

When I leave camp not only do I feel good about myself I also hope the young ones do too.

A big thanks to the BOD for putting this all together. It is much appreciated.

Rachel from MT (yes its still snowing here)
rachelcasa
Posts: 729
Joined: Mon Apr 21, 2003 11:45 pm

Re: Camp 2009

Post by rachelcasa »

I forgot to add the myotrac. If we could get someone there to show us and explain to us how it works I think it would be a great added feature.

Thanks
User avatar
Chris88
Posts: 45
Joined: Wed Jul 11, 2007 4:21 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI C5 to C7
No operations to this point.
Location: Savannah, GA

Re: Camp 2009

Post by Chris88 »

Richard mentioned motivational speakers in the original post. What about Jim Abbott?

BTW his website has some good info on one handed typing and playing sports with one good hand.
http://www.jimabbott.info/speechexcerpts.html

See ya’ll in the Sunshine State next year.
Chris LOBPI
"Success is peace of mind, which is a direct result of self satisfaction in knowing you made the effort to do the best of which you are capable."
Coach John Wooden
Mary Beth
Posts: 73
Joined: Sun Jan 20, 2008 1:01 pm

Re: Camp 2009

Post by Mary Beth »

I love this mans thoughts.

How he uses the whole "ADAPT" love it!!

Makes me think...
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Camp 2009

Post by Carolyn J »

I have a Special Request for the BOD. .....

PLEASE retire the "Oldest BPI attending Camp" Award.
It's now redundant!!....LOL :)
Hugs,
Carolyn J
LOBPI
Carolyn J
Adult LOBPI
User avatar
smith727
Posts: 60
Joined: Mon Dec 20, 2004 11:18 am

Re: Camp 2009

Post by smith727 »

Just curious... would anyone be interested in a one day unarmed self defense course that focused on techniques that work well with a BPI?
Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: Camp 2009

Post by Joanie »

Yes, I would be interested. I've always wondered what I could do if I were attacked. For example, most people are right handed. If an attacker grabbed me by the throat with his right hand, the advice would be to hit him in the solar plexus with my left elbow. I am LOBPI, so this advice would not work for me.

Joanie
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