Invisible disabilities..... I think we can all relate to this article

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Locked
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Invisible disabilities..... I think we can all relate to this article

Post by Kath »

I was reading about disabilities on the Internet and came across this article.
I know I could relate to it after some recent air flight/port problems.

http://www.tcpalm.com/news/2008/feb/17/ ... any-forms/

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Invisible disabilities..... I think we can all relate to this article

Post by Judy-T »

Nice article. Maybe we should print it out and hand it to people who don't understand,ex. airline personal.
User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: Invisible disabilities..... I think we can all relate to this article

Post by karategirl1kyu »

I agree- good article!
~Mel
~Mel/23/LOBPI
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Invisible disabilities..... I think we can all relate to this article

Post by Carolyn J »

Excellent article, Kath! Thank You.

HUGS all around, :)
Carolyn J


Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
TinaT
Posts: 155
Joined: Sun Feb 24, 2008 3:21 am

Re: Invisible disabilities..... I think we can all relate to this article

Post by TinaT »

Good article Kath, thanks for sharing. I couldn't agree with it more. And think of how much less stress we could have in our lives with that simple change.....

Tina
Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: Invisible disabilities..... I think we can all relate to this article

Post by Joanie »

I agree. Good article. Thanks, Kath.

Joanie
Locked