Hello everyone!
I am not new to the board, but have not posted in a long while...
Since last August, I have been working on starting a non-profit organization to (hopefully) accomplish two goals:
1. Raise awareness and provide information about OBPIs
2. Raise money for the BP team at the Philadelphia Shriners Hospital where our daughter had surgery.
Well, our website finally went live last week...
www.twolittlemonkeys.org
If you get a chance, please check it out and let me know what you think. I am completely open to any questions, comments, complaints, suggestions, etc you may have. Feel free to respond to this post or email me directly.
As you will read in the About Us section, our daughter Allison suffered a brachial plexus injury to her right arm at birth. She has had one surgery to date - an arthroscopic ACR with Dr. Kozin in May of 2007. She was nine months old at the time, their youngest child to undergo this procedure, but because her glenohumeral joint was in such rapid deterioration something had to be done.
Ally is doing wonderfully today. We still have major work to do with her to help her reach more of her full-potential, but considering where she was pre-surgery, we could not be happier.
Anyway, that's a very brief version of our story...
Thank you all for reading and I hope that you enjoy looking at our website.
Sincerely,
Andrea
Two Little Monkeys
Re: Two Little Monkeys
Andrea,
The site is wonderful!!! And, I love those adorable tee shirts you're selling! How cool is it that you're donating the proceeds to the Shriners BPI team???
I'm going to send a link to my address list. I also think the tee shirts are a very cool, fun way to spread awareness about OBPI. The more people who become educated about this injury, the less it will occur!!!
Thanks for doing this for our community!!!
mica
The site is wonderful!!! And, I love those adorable tee shirts you're selling! How cool is it that you're donating the proceeds to the Shriners BPI team???
I'm going to send a link to my address list. I also think the tee shirts are a very cool, fun way to spread awareness about OBPI. The more people who become educated about this injury, the less it will occur!!!
Thanks for doing this for our community!!!
mica
Re: Two Little Monkeys
Andrea,
Beautiful job!!! It's funny, I call my children two little monkeys. I have no doubt that you will accomplish your goals. Nice work.
Just ordered my shirt. I love it!!
Can't wait to get it:-)
Message was edited by: Allison-S
Beautiful job!!! It's funny, I call my children two little monkeys. I have no doubt that you will accomplish your goals. Nice work.
Just ordered my shirt. I love it!!
Can't wait to get it:-)
Message was edited by: Allison-S
- marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Two Little Monkeys
Ordered mine too! Can't wait to get it!
Marieke, 32, LOBPI
Marieke, 32, LOBPI
Re: Two Little Monkeys
I think the website is great! Very comprehensive. Cute shirts we will buy some too.
- Tanya in NY
- Posts: 935
- Joined: Mon May 03, 2004 10:51 am
- Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
- Location: NY State
- Contact:
Re: Two Little Monkeys
Just ordered one for Amber. Very cute shirts, and great job on putting the site together. Way better than I could have ever managed to put together on a website. I'm envious of those who can manage a computer that well!
Way to go!
Tanya in NY
Amber's Mom, ROBPI, 5 years old
Way to go!
Tanya in NY
Amber's Mom, ROBPI, 5 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
Amber's Mom, ROBPI, 13 years old
Re: Two Little Monkeys
So Cute!! I just ordered one for me and one for Olivia. It's funny because I have 2 children and I have always called Olivia my little monkey because she has is such a climber, and gets into everything...even moreso since having her surgery with Dr. Kozin in October! What a wonderful idea you had to honor such a wonderful place like Shriners!
Felicia mom to Olivia 2 1/2
Felicia mom to Olivia 2 1/2
- karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Two Little Monkeys
Bumping up for those who haven't seen this great site!
Aria loves wearing her shirt!!! Everyone always wants to know where we got it, and it really gives me a chance to educate another family about this PREVENTABLE injury!!!
mica
Aria loves wearing her shirt!!! Everyone always wants to know where we got it, and it really gives me a chance to educate another family about this PREVENTABLE injury!!!
mica
-
- Posts: 95
- Joined: Sat Dec 15, 2007 2:48 pm
Re: Two Little Monkeys
Yes! I love the site and I'm ordering shirts for Cole and myself. His might be a little big...but it will be just right.
On a side note....I was wondering where you found the stats. The "out of those 40% only 10-15% need surgical intervention." (If I read it right.)
Cole is 9 1/2 now. No surgeries yet. It just gives me hope that more recovery with us working is still a possibility.
Nicole
On a side note....I was wondering where you found the stats. The "out of those 40% only 10-15% need surgical intervention." (If I read it right.)
Cole is 9 1/2 now. No surgeries yet. It just gives me hope that more recovery with us working is still a possibility.
Nicole