Has anyone been treated for BPI at St Louis Children's Hospital

[Misha]

My son, Aiden, is 6 months and 2 weeks--we have just recently discovered upon researching online that there is such a thing as a specialist for BPI and that Aiden should have already been evaluated. However, our Ped/and therapist had never mentioned any of this information to us--Aiden is doing very well with therapy but we still do not know the severity of his injury etc. We now have an eval scheduled at the end of this month with Dr. Greg Borschel at St Louis Children's and I was hoping to get some feedback from anyone who might have been treated and/or their child treated there. Any advice would be greatly appreciated.

[mommieinneed]

Sorry I have been away from the computer for a couple of days but I will post what I think.

My daughter had her primary with Dr Park who im pretty sure is with the Dr you said, Maggie is five and we had the same thing happen with us, didnt get her seen by a BPI specialist till she was 10 mos old.

I love their team for the therapy and the Primary surgery (which I think is all they do there), so far other then that it has been a lets wait and see thing which I didnt like so we are going for other opinions. As I said before though they did an awesome job with the primary, Maggie went from nothing to being able to use it as a helper arm and a little more.

Good luck and best wishes to you both. Hope I helped a little, im new to this myself only been finding info on BPI for only going on a year now dont know why we waited so long.

[Zadynsmom]

Hello, we too have been working with the St. Louis Children's Hospital. Dr. Park did my daughter's nerve graft surgery almost 2 years ago. We were very happy with the clinic and the hospital. The experience, as hard as it was to send an 8 month old baby into surgery, was a positive one. We are actually going to go back to St. Louis for a follow up in April.
Let me know if you have any specific questions.

Alisa, mom of Zadyn, 2, LOBPI

[bfaithda]

I have also taken my son to St. Louis. He is 8 months old now, but when he had his primary surgery he was 3 months old. He had severe damage. The therapist there are great and the Pac nurse Nicole is wonderful also. I have not seen Dr. Borschel only Dr. Parks. The hospital staff and nurses were great. The only thing I do not like about it now is the lets wait see what happens also. After researching a lot I feel waiting is not helping my son.
If you have any more question let me know I will be happy to talk with you.