How do I know if BPI is "cured"? (warning: long)

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Bridget
Posts: 295
Joined: Mon Nov 05, 2001 12:09 pm

Re: How do I know if BPI is

Post by Bridget »

Research has shown that even in those children believed to have had full, spontaneous recovery of a birth related bpi, a substantial number exhibit residual effects of the injury at or around age 5.

If you haven't already, please visit the awareness section of this site and read as much as you can. Please send your name and address to nancy@ubpn.org and request a copy of the Awareness Outreach publication to be mailed to you.

Also, you may find it reassuring to have your child examined by a specialist in the bpi field. You will find a comprehensive resource on this website (visit the home page and click on the Medical Resource Listing link).

Good luck,
Bridget

Gayle
Posts: 63
Joined: Tue Dec 04, 2001 10:46 pm

Re: How do I know if BPI is

Post by Gayle »

My Daughter is 16 months old and has really great movement after a slow start. She was described as a BAD stretch injury.

Even w/such great movement she was suggested to do the Modquad because of her shoulder sloping inward. This can cause problmes later on in life...>>Arthritis and Scoliosis were two topics introduced to us recently.

Do some more research and start asking other parents who have older children who thought were fine.


I posted awhile back and another parent was getting their child the mod quad at age 4 even though they thought things were fine at 18 months.

I do not know what holds in store long term. But the fact that some parents have had to go back years later does have me worried.

Gayle
francine
Posts: 3656
Joined: Mon Nov 05, 2001 12:52 pm

Re: How do I know if BPI is

Post by francine »

I think that the most important thing you can do for your child is to have them evaluated by a brachial plexus specialist every so often to make sure that things are going well and to also catch things (if they do happen) at an early stage

It's just the kind of thing you want to keep on top of. Maybe a visit with a PT for an evaluation once every so often would be a good idea too.

good luck
francine
m&mmom
Posts: 1395
Joined: Sun Nov 04, 2001 9:34 am

Re: How do I know if BPI is

Post by m&mmom »

I have two children that were born with rbpi.
Melanie had a slight stretch of C5&6. By eight weeks she was diagnosed as "recovered". The neurologist did say that once the nerves are stretched they are never the same and just to keep in mind that although highly unlikely she could have problems later on in life. She'll be three in August and so far we're in the clear.
Matthew on the other hand was estimated to be 7lbs 9oz three days before I was induced. He was 10lbs 6oz two weeks early. Ultrasounds can't measure fat and there's a +/- 10% on the readings.
About lawyers
From what I understand most of them do not take a case if recovery by the first couple of years is good. It wouldn't hurt to call one and ask, my advise on that would be to find one with bpi experience.
If you're not ever comfortable with your son's recovery I would suggest seeing a specialist to put you mind at ease. Possibly monthly chiropractic visits would be beneficial as well if you're open to that type of treatment.
Cindy
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: How do I know if BPI is

Post by admin »

it is my beleif that a bpi is for life. I know this seems harsh, but even in children who have appeared to make a spontaneous recovery, problems can occur later in childhood or even in adulthood.
With this in mind, I agree that every child with an obpi should have an evaluation annually to check that things are going OK.
I think children can recover well, even 99.99% in some cases but I don't believe that a bpi is ever "cured"
I wish you and your family well.
Carole
Posts: 113
Joined: Wed Nov 07, 2001 10:39 pm

Re: How do I know if BPI is

Post by Carole »

My child has a mild BPI no movment for nine weeks in the arm but now has full range and uses it for everything. She is 2 now we have gone the full route of therapy 3x a week and evaluations with BPI specialists. You mention some things that came up with us , favoring the arm or holding it in a certain way while playing, knots and popping -these things should be watched by a BPI specialist IMHO- We use Dr. Waters in Boston and send video tapes for free evaluation to TCH. Good luck in your search for answers we have been told that she will always need therapy of some sort and will probably have residule effects through life but we are so grateful for all she has and choose to stay in touch with the BPI world and be proactive- many of my friends think I am nuts and "should get over the arm thing" but I know I have left no rock unturned in her recovery and that gives me peace even if she has trouble later. Blessings on your choices. Carole
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: How do I know if BPI is

Post by admin »

The statue of limitations for most states is 2 years, hurry up and get a lawyer. Practically the same thing happened to me , we are in the middle of a lawsuit for 2 years now., if the first one tells you that there is no case , look for another one, your child deserves to be compensated. God bless.
srios123
Posts: 1
Joined: Mon Jul 01, 2002 3:29 pm

Re: How do I know if BPI is

Post by srios123 »

tHE STATUE OF LIMITACIONS IS 2 YEARS , HURRY UP AND GET A LAWYER.
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: How do I know if BPI is

Post by admin »

In Indiana the limitation is 7 years for children and 2 years for adults. It is deffinately worth looking into to make these physician's realize what they are doing to our children.
marymom
Posts: 692
Joined: Mon Nov 05, 2001 5:05 pm
Injury Description, Date, extent, surgical intervention etc: Teen aged home birthed son with OBPI
Location: Fort Pierce, FL

Re: How do I know if BPI is

Post by marymom »

-sounds to me like you will have great recovery with your child -
what does cured mean?
I thought litigation was usually more productive when the childs recovery was not as good-
making the system flawed because ofcourse injury does not define negligence, negligence does, nor does recovery define injury in BPIs however, thats how it seems to go, the better recovery the less chances at litigation but hey- great recovery is good enough in my book- goodluck!
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