Hello again! Been a while!

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Katy1982
Posts: 21
Joined: Wed Aug 15, 2007 10:57 pm

Hello again! Been a while!

Post by Katy1982 »

Hello everyone! I haven't been on for a while to post! I had my shoulder tendon transfer in September and I am doing well. I didn't get as much elevation as I had hoped- I started at about 15 deg before surgery and now I have about 45-50. It's continuing to improve with therapy and the pain is gone finally! haha

I have another surgical option that I am concidering and was wondering if I could get any feedback from anyone here-
Its a humeral rotational osteotomy. Basically they go in and cut through the humerus and rotate it to a new position and pin it. It will give me the "appearance" of external rotation.. and a some funtion with that, but I dont have anything to lose from it...however since it is a big surgery I am still concidering it.
Does anyone here have any info about this type of procedure??

Anyway- I hope everyone is doing well! I'll try to post some pics of my before and after surgery.... it's pretty cool!
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: Hello again! Been a while!

Post by Mica »

Katy,

I'm so glad to hear you're out of pain! I've thought of you often, and had wondered how you were doing since your transfers.

You can do a search for the keywords "humeral osteotomy" and threads will pop up in your results window. If you read a thread where you would like to ask the poster further questions, you can click on their name. If they have not made their e-mail private, you can e-mail them directly with questions.

I have learned so much through correspondence started this way. And, I've never had anyone unwilling to help me, or be offended that I contacted them. I have also been contacted many times in this manner - usually by parents whose children are about to undergo primary surgery. I'm always glad to answer any question asked and help however I can. I'll bet you'll get the same response.

Good luck with this decision. I think it's awesome that you had the guts to undergo a secondary surgery, and I'm so glad it is working for you.

Congratulations, Katy! :)
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Hello again! Been a while!

Post by Carolyn J »

Katy,
Thanks alot for your update. I have ben praying for you since your surgery. I azm happy that you have more options! Got Luck. As Mica said, there areA number of posts in this Forum about humeral Osteotomy.

((((HUGS))))
Carolyn J
LOBPI/69....& counting ;)
Carolyn J
Adult LOBPI
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Hello again! Been a while!

Post by hope16_05 »

Hey Katy!!! Great to hear from you. Glad that surgery went well and you are out of pain! I hope it stays that way!

Sorry I dont have any thoughts about your optional surgery. I havent had to think about that one. Or more so I havent been willing to because it is such a permanent thing. But that could be a great thing especially if you have nothin to lose. But maybe email another doc and ask if there might be any cons to the surgery or ask your doc again. You just want to be sure your not going to have to give up dreams or activities you love.

Good luck with your decision and please keep us posted!!! And pics are welcome! I want to see what you have accomplished!

Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
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