Torticollis & Brachial Plexus

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Michele
Posts: 4
Joined: Wed Jun 26, 2002 4:24 pm

Torticollis & Brachial Plexus

Post by Michele »

Hello!
I was wondering if anyone has any info about the connection between torticollis and brachial plexus? My daughter is 18 months now and was diagnosed with torticollis at 3 months but I was only told she had a bpi right arm and a "winged scapula" 3 months ago. I am very confused and angry. Her injury is not that severe as she moves almost like any other toddler but has trouble lifting her right arm to reach up and her shoulder droops forward. I am scared ! She was only 5 pounds when she was born (1 month premature) and no one said that there was any complications! I am unable to share my story as the site keeps saying that it is down. Just wondering if anyone out there had torticollis too?
Bridget
Posts: 295
Joined: Mon Nov 05, 2001 12:09 pm

Re: Torticollis & Brachial Plexus

Post by Bridget »

Michele,

Please consider posting on the general message board, this forum is mostly related to technical problems with using the site. It sounds as though you really need to see a brachial plexus specialist to get some firm answers and a diagnosis.

Where do you live? Please check out the Medical Resource Directory (you can reach it from the home page of this site) for a comprehensive listing of specialists.

Good luck,
Bridget

Michele
Posts: 4
Joined: Wed Jun 26, 2002 4:24 pm

Re: Torticollis & Brachial Plexus

Post by Michele »

Thank you for your help :)
francine
Posts: 3656
Joined: Mon Nov 05, 2001 12:52 pm

Re: Torticollis & Brachial Plexus

Post by francine »

Michele,

where do you live? check this page out

http://www.injurednewborn.com/gatherings.html

this is as listing of picnics/gatherings that are happening over the summer/fall months

many of them have visit by bpi specialists - maybe you can come to one and meet other families and spend some time with the docs?

-francine

http://www.injurednewborn.com
Lynnedixie
Posts: 2
Joined: Mon Sep 02, 2002 3:14 pm

Re: Torticollis & Brachial Plexus

Post by Lynnedixie »

Hello, My name is Lynne Byers and my daughter who is now 31/2 was injuried at birth and had right arm erbs palsy and left neck torticollis. The torticollis needs Physical threapy as well as the erbs palsy. The physical therapist will show you the proper way to stretch both the arm and neck.. I do not know where you live but I live in Boston and I strongly reccommend you have an orthopedic surgeon(children's)to evaluate your child. Please feel feel to call or e-mail me...I like you was extremely upset when all of this happen during the birth process. My e-mail is Lynnedixie@aol.com and my phone number is 508 644-3433. Sincerely, Lynne Byers
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Torticollis & Brachial Plexus

Post by admin »

Michele,

My little guy is 9 months, diagnosed with left torticollis at 2 weeks, with a hemotoma. Ref to a ped surgeon who thankfully ruled out surgery. Stretches and Physical therapy began. Pt is concerned with quality of movement and shoulder/scapula instabilty. We continue to have cycles where the head tilt is evident followed by periods of terrific midline posture, and then tilt again. Pt is concerned about possible plexus injury, and we are scheduled for a neuro consult. It seems that the link between torticollis and brachial plexus injury is much more common, especially when the torticollis is from birth injury.. Where are you now in terms of your status?
annster
Posts: 4
Joined: Thu Jul 31, 2003 2:29 am

Re: Torticollis & Brachial Plexus

Post by annster »

HI. My son Zak has Torticollis. He had it since birth from the doctor pulling on his head. She twisted it too hard. It can happen in a natural birth and rarely a c section. It usually on the opposite side of the injury. My son's arm{right}is affeted, so his head faced left. He is has therapy. Does this help? Ann
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