Need help with CA services

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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myhumanrevolution
Posts: 62
Joined: Mon May 24, 2004 5:23 pm
Injury Description, Date, extent, surgical intervention etc: Son with ROBPI Global
Contact:

Need help with CA services

Post by myhumanrevolution »

Hi everyone!

My son is 3 1/2 and when we lived in NY 4 months ago he was getting PT and OT 5 times a week. Now here in CA they want to only give him OT once a week. He has a very severe injury (just started to really feel a few parts of his hand this summer. He also is getting a very slight grasping movement in his hand... He also has a whole bunch of other issues related to his lack of arm strength/movement/feeling etc. Needless to say he needs more than one OT spot for an hour a week.

I've gone through all the red tape CA is asking for... Douglas' Doctors agree that he needs more... but even with prescriptions, CA is not able to give more than once a week to him. Does this sound right?

Maybe it's just that NY has such great services and I need to pursue private OT for Douglas... I wonder if we can afford it... I'm kinda freaking out....

help
Jennie
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Need help with CA services

Post by katep »

Jennie,

Are you trying to get the therapy through CCS (California Children's Services) or the school district?

Kate
myhumanrevolution
Posts: 62
Joined: Mon May 24, 2004 5:23 pm
Injury Description, Date, extent, surgical intervention etc: Son with ROBPI Global
Contact:

Re: Need help with CA services

Post by myhumanrevolution »

CCS. He's too young for school services since he's only 3 1/2.
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Need help with CA services

Post by katep »

Jennie,

That absolutely does not sound right at all. Joshua has a moderate injury and is getting PT 2x/week (it was going to be OT once and PT once per week but neither of us liked the OT much!). That's all we can fit in the schedule, I bet if I asked for more we could get it?!

I'll try to ask Joshua's PT for suggestions. We had no problems getting the 2x/week, it was recommended by the therapists and our pediatrician just signed off on the prescription (since our BPI doc is also out of state).

Kate
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