News

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
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Location: Wisconsin
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News

Post by Brenda333 »

Thought I would pass this along.

How I overcame my disability to make music
ic Coventry - Coventry,UK
Matt Parsons, aged 24, of Winchester Court, Dunchurch, near Rugby, suffers from Erb's Palsy, which restricts the movement in his left arm. ...

http://iccoventry.icnetwork.co.uk/0100n ... _page.html
Brenda
BPI Connection
http://www.freewebs.com/wbpic
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: News

Post by Kath »

Brenda
Thanks for posting this link.
It's great to see how well this young obpi is doing.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: News

Post by F-Litz »

Brenda - what a find!

Here's his website
http://www.mattparsonsartandmusic.com
I wrote to him - he's as sweet as can be. 20% of his music sales goes to the Erb's Palsy group in the UK. There's a link to his store and the group and his site - you can buy his CD on Amazon.
april
Posts: 30
Joined: Fri Nov 08, 2002 6:28 pm

Re: News

Post by april »

THANKS SO MUCH for posting this link ! After reading the article about Matt, I went to youtube and watched another video where he starts out w/ strumming a guitar. All my son wanted for Christmas was a guitar, and I know he will LOVE seeing this video of someone else who has an arm like his, but can play the guitar so well. Very inspiring!! I think I'll get him guitar lessons THIS Christmas. Thanks again!
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