Amy:
I love that you learned to control it! What a great parlor game...
I guess it is annoying her, as she went to the nurse today because of it. She can't feel it happening, it is just if she sees it.
As for the temp...oy vey. A glove makes such a big difference, eh? I know her arm is usually cold, but this temperature swinging must be really bothersome to her.
Thanks for all the info,
and Kath...just the upper arm? hmmm and what controls the lower arm and hand? the handiplexus?????
claudia
funny fingers
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: funny fingers
Yup Claudia .... it's the handplexus...
I bet if I wrote that down on a form, no one would notice...LOL..
Your too funny!
Kath adult/robpi
I bet if I wrote that down on a form, no one would notice...LOL..
Your too funny!
Kath adult/robpi
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: funny fingers
I frequently have twitches in my BPI arm. I didn't really start noticing it until a year or so ago. Maybe it was happening and I just couldn't feel it. Temperature doesn't usually bother me too much, but my circulation in my BPI arm is pretty bad. It's really obvious after I have been running or doing something active. The area around my bicep turns red and splotchy. The skin there is also a little rough.
Anyway... it's definitely all BPI stuff.
I'm also extremely double jointed in the fingers in my BPI arm. Anyone else?
Anyway... it's definitely all BPI stuff.
I'm also extremely double jointed in the fingers in my BPI arm. Anyone else?
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: funny fingers
My bpi arm twitches all the time... i think its kind of funny... people look at me funny but i really dont care... it doesnt get really colder than the other one, but it gets cold first now that i think about it.. and yes i am def double jointed in the fingers in my bpi arm!! i can bend the thumb back to my wrist and not even feel it...
~Mel, 20 LOBPI
~Mel, 20 LOBPI
~Mel/23/LOBPI
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parent needing help
- Posts: 98
- Joined: Wed Oct 05, 2005 8:16 pm
- Injury Description, Date, extent, surgical intervention etc: 03/28/2000 OBPI. rc5-6 rupture, rc7-8 avulsion rt1 stretch. L humeral fx lc7 stretch
- Location: Huntington, West Virginia
Re: funny fingers
Katie too can hyperextend her fingers. Not sure I would dub it double jointed but definitely off!
Her arm stays cold and swollen as well as the twitchy. Stink stuff all around but learned from Kath years ago to keep something soft and warm close by. She gets really stiff when she first wakes up too, has to work it out.
Her arm stays cold and swollen as well as the twitchy. Stink stuff all around but learned from Kath years ago to keep something soft and warm close by. She gets really stiff when she first wakes up too, has to work it out.
Christy & Katie Chapman
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: funny fingers
I too am hyperflexible, all my joints are actually, but my OBPI hand/fingers are more so.
Marieke (32,LOBPI)
Marieke (32,LOBPI)