Welcome Trevor

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Welcome Trevor

Post by hope16_05 »

Trevor, I see that you are new here and I thought I would welcome you to the group we all wish we didnt have to be part of.
If you have any questions at all, feel free to ask! There are no stupid questions, if you are wondering about it chances are some one else is too but hasnt worked up the nerve to ask.

Hope you stick around!
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
Mare
Posts: 708
Joined: Mon Mar 10, 2003 5:30 pm

Re: Welcome Trevor

Post by Mare »

Yes Welcome Trevor
I'm Mare mom to Frankie 14yr old lobpi. Hope to hear from you. We learn so much from each other it really is great to have all the opinions, advice and information from all over the world right at your finger tips.
Mare
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Welcome Trevor

Post by Carolyn J »

Welcome Trevor,
I am glad you found us. I didn't find anyone or even a name for my injury until I was 65!

If you want to knowmore about how great UBPN Camps are (held every 2 years) read the FORUM about "UBPN CAMP 2007". We all shared alot including pictures of both having fun and challanging ourselves with some sports,etc.

Carolyn J
LOBPI/69
Carolyn J
Adult LOBPI
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Welcome Trevor

Post by marieke »

Welcome Trevor! As others have said, feel free to read and pot to any thread or start one of your own.
Marieke (32, LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Welcome Trevor

Post by Kath »

Welcome Trevor

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
rachelcasa
Posts: 729
Joined: Mon Apr 21, 2003 11:45 pm

Re: Welcome Trevor

Post by rachelcasa »

Welcome to the boards Trevor. Please feel free to ask anything. We are all eager to answer and it helps us all to learn more. Nice to meet you and welcome.

Rachel from MT
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