YEAH BIOFEEDBACK **********
YEAH BIOFEEDBACK **********
Frankie just had his OT with his new Pathways biofeedback machine and he did great and likes the fact that he has control of his therapy. She showed him how to work the machine on his own so all he needs is for me to put the pads on. The first thing the OT noticed is his arm looked straighter and frankie said yes since 1st trying the machine he has learned a different way of holding his arm he says it showed him in just 10 min how to concentrate on relaxing muscles which in the past were always contracted. If anyone is looking into getting a machine do your self a favor and get the dual channel machine it shows you when you are cocontracting and when your doing the exercises correctly or overcompensating. Mare
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: YEAH BIOFEEDBACK **********
Mare did Frankie get the two channel unit?
I am so happy for him! Go Frankie!
Hugs,
Amy 20 years old ROBPI from MN
I am so happy for him! Go Frankie!
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
Re: YEAH BIOFEEDBACK **********
Hey Amy
Yes he got the Pathways TR20 2 channel it is $695 the myotrac 2 channel was like a thousand its is $85 a month to rent for some messed up reason insurance doesn't cover it. Mare
Yes he got the Pathways TR20 2 channel it is $695 the myotrac 2 channel was like a thousand its is $85 a month to rent for some messed up reason insurance doesn't cover it. Mare
Re: YEAH BIOFEEDBACK **********
Mare,
Would Frankie mind if you posted your comments on the sEMG board as well? It is so important for those of you lucky enough to have really helpful therapists to post! Some of us just don't have that kind of luck...
Maybe Frankie would even enjoy "teaching" other people
Kate
Would Frankie mind if you posted your comments on the sEMG board as well? It is so important for those of you lucky enough to have really helpful therapists to post! Some of us just don't have that kind of luck...
Maybe Frankie would even enjoy "teaching" other people
Kate
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: YEAH BIOFEEDBACK **********
YOU GO, FRANKIE!! Let's see how many Therapists,and other Professionsals you can teach! Not even to mention parents you will give HOPE! 
HUGS to you both! I am excited to follow your "project" on this machine.
Carolyn J
HUGS to you both! I am excited to follow your "project" on this machine.
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: YEAH BIOFEEDBACK **********
Kate
I pretty much thought that posting here everyone that needed it could read it I'm getting ready to have surgery on my arm and have a lot of pain so this is as much posting as I can do.Right now I'm typing with two fingers. As far as frankie teaching anyone that should really be done by an OT/PT they have to locate the muscles you want to work and design an exercise program to use with the machine and as you know no two bpi injuries are alike. Frankie will see his OT next week to make sure he is using it right and doing the exercises right then he will see her 1 to 2 times a month to change exersies and up his goals. So as you can see a professional should really be monitoring the the progress and use. Sorry I can't be of more help Mare
I pretty much thought that posting here everyone that needed it could read it I'm getting ready to have surgery on my arm and have a lot of pain so this is as much posting as I can do.Right now I'm typing with two fingers. As far as frankie teaching anyone that should really be done by an OT/PT they have to locate the muscles you want to work and design an exercise program to use with the machine and as you know no two bpi injuries are alike. Frankie will see his OT next week to make sure he is using it right and doing the exercises right then he will see her 1 to 2 times a month to change exersies and up his goals. So as you can see a professional should really be monitoring the the progress and use. Sorry I can't be of more help Mare
Re: YEAH BIOFEEDBACK **********
I guess those of us without helpful or trained therapists are just screwed then. Gee... thanks.
Kate
Kate
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: YEAH BIOFEEDBACK **********
Mare,
You could just cut and copy in into a post on Kate's board, no need to re-type it all... just a thought. It would be helpful to others as not everyone on Kate's board comes here..
marieke (32, LOBPI)
You could just cut and copy in into a post on Kate's board, no need to re-type it all... just a thought. It would be helpful to others as not everyone on Kate's board comes here..
marieke (32, LOBPI)
Re: YEAH BIOFEEDBACK **********
Mare,
The whole purpose of the other board is to archive all the info in one place so people coming in the future can easily find information specifically on sEMG for BPI, and especially find personal stories that they can take to their own therapist to encourage them to try it. Sure people reading on UBPN actively *right now* are following your story. What about future parents and future therapists? Didn't you say that you were going to ask Frankie's therapist to check out the board to learn more? How well do you think it would have gone over if you had asked her to come to UBPN, do a search on "biofeedback" then "myotrac" then "sEMG" and "please read all the posts and see what you think"? Or, better yet, what if you had just heard about the myotrac from Camp by word of mouth and had to ask your therapist to email a whole bunch of different people for more information?
If it's just a matter of not wanting to type anything, I'd be happy to cut-and-paste what you've written here for you.
Kate
The whole purpose of the other board is to archive all the info in one place so people coming in the future can easily find information specifically on sEMG for BPI, and especially find personal stories that they can take to their own therapist to encourage them to try it. Sure people reading on UBPN actively *right now* are following your story. What about future parents and future therapists? Didn't you say that you were going to ask Frankie's therapist to check out the board to learn more? How well do you think it would have gone over if you had asked her to come to UBPN, do a search on "biofeedback" then "myotrac" then "sEMG" and "please read all the posts and see what you think"? Or, better yet, what if you had just heard about the myotrac from Camp by word of mouth and had to ask your therapist to email a whole bunch of different people for more information?
If it's just a matter of not wanting to type anything, I'd be happy to cut-and-paste what you've written here for you.
Kate
Re: YEAH BIOFEEDBACK **********
Kate
I'm sorry you feel that way but I am not a trained therapist I am still learning myself and do not feel qualified to give advice on how to use this machine I have used it once today without help and won't know till our next therapy session if I'm doing it right plus all I have heard about is the myotrac which is not what I am using so how can I possibly give instruction on something I have never seen. If you give me the website I will try to copy and paste my last post but don't the same people read these posts??? I am truly sorry if I have upset you I will answer any questions I can and will ask Frankies therapist any questions you may have. Mare
I'm sorry you feel that way but I am not a trained therapist I am still learning myself and do not feel qualified to give advice on how to use this machine I have used it once today without help and won't know till our next therapy session if I'm doing it right plus all I have heard about is the myotrac which is not what I am using so how can I possibly give instruction on something I have never seen. If you give me the website I will try to copy and paste my last post but don't the same people read these posts??? I am truly sorry if I have upset you I will answer any questions I can and will ask Frankies therapist any questions you may have. Mare