Thought you might enjoy this one!!

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Thought you might enjoy this one!!

Post by karategirl1kyu »

I wrote a poem a few days ago, at least describing my feelings on this:

BPI 10/11/07
A burden in unwelcome form
Poses hardest to conform
A world of which they can’t relate
Makes it hard to appreciate
The forms and functions, they don’t know
Have come for us painfully slow
Things can only work so much
Sometimes even sense of touch
They don’t know how it may feel
To be alone through this ordeal
In our dreams we can play
When we wake, it’s back to gray
We should avoid being blue
Over things that we can’t do
Just cant seem to get it out
An easy fix we always doubt
Can they understand this pain
We are different, we’re not plain
Sometimes it feels like we are small
We can’t seem to reach it all
It’s just hard to educate
The ridicule does not abate
Try to lead a normal life
Leave behind the constant strife
I use words to show the truth
Of what has happened through my youth…


tell me what you think!
~Mel/23/LOBPI
Mare
Posts: 708
Joined: Mon Mar 10, 2003 5:30 pm

Re: Thought you might enjoy this one!!

Post by Mare »

That was GREAT I think you should send it to the Outreach newsletter you have a true talent
Mare
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Thought you might enjoy this one!!

Post by marieke »

Great Poem! I love it. You write well, keep writting and expresisng your feelings, it's a great way to communicate how you feel.
Marieke (31, LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: Thought you might enjoy this one!!

Post by karategirl1kyu »

most of my poetry is about my SI and depression, but ive decided to branch off of that and see what i can do with my other faults and difficulties! For some reason, i cant write about anything happy!
~Mel

BTW- how would i be able to send it to outreach... and how can i actually GET the newsletter???


Message was edited by: karategirl1kyu
~Mel/23/LOBPI
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Thought you might enjoy this one!!

Post by marieke »

Send it and your name and address to Nancy Birk

nancy@ubpn.org

Marieke
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Thought you might enjoy this one!!

Post by brandonsmom »

Tha is just awsome. I hoep my son with a ROBPI can learn to write like that and get his feelings out instead of just hiding them under a fake smile......Great JOB !!
GAyle mom to Brandon 9 ROBPI
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Thought you might enjoy this one!!

Post by Kath »

Mel
Keep writing about your feelings.
I find that writing,helps me to heal.

Many years ago someone asked me to post the things I felt I lost because I am OBPI.
I began to list, the things I felt I lost.
Before I realized it, I began to list the things I gained.
A parent of an obpi child actually counted and posted I had more blessing then losses.
I hope that you can see some of the things you gained.

OBPI are challenged to do the ordinary... that makes us strong!
We've lived with pain, teasing and not fitting into the box... that makes us understanding and compassionate.
We cannot do things like other people... that makes us creative.
I think we have, as a group, a good sense of humor and that is what has served us.

I've been fortunate and blessed to have met so many obpi/adults and children over the last nine years.
I'm so amazed at the strength, humor and flexibility of both obpi children and adults.
Meeting my peers has truly helped me to heal and really helps the small children's self-esteem.

I am so glad you shared this poem with us... It's how I've felt many times over the years.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Thought you might enjoy this one!!

Post by hope16_05 »

Mel, thats a very good poem!!! Thanks for sharing! I too have had feelings like that over the years.
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: Thought you might enjoy this one!!

Post by karategirl1kyu »

Thank you everyone!! I love criticism!!! lol!
HUGZ TO ALL!!
~Mel
~Mel/23/LOBPI
Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: Thought you might enjoy this one!!

Post by Joanie »

Mellissa,

That's a beautiful poem. You've expressed yourself, and me, so well. I agree, sent it to Nancy for inclusion in Outreach.

Joanie
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