Looking for some advise

Treatments, Rehabilitation, and Recovery
cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:

Looking for some advise

Post by cbe411 »

Hey guys... we have already begun planning for the next camp! It is going to be in sunny Florida!

I am looking for some help here... Ryan, Joe and I had a great time at camp in Seattle but it would be awesome to have some more and new TBPI come out!

So... what do we need to bring you all out to camp? What type of activities are we looking for?

I am open to any and all suggestions... feel free to email ant questions that you might have.

Courtney
Joy in FL
Posts: 357
Joined: Sun Nov 04, 2001 8:36 pm
Location: Georgia

Re: Looking for some advise

Post by Joy in FL »

What area are you looking to have it in, Courtney?
Joy in FL is now living in Georgia!
Left TBI on October 31, 1991
ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: Looking for some advise

Post by ptrefam »

Trick Dustin into it? lol Some how I need for him to talk to you all. He thinks these boards are just a bunch of injured people whining. I have told him it is not and I think he would get a lot out of it, rather than me passing it on, but so far no interest. Will try to work on it. If you all go to his myspace or facebook and meet him without him knowing you are injured then bring it up after he knows you a bit, it may encourage him. OH but don't tell him I said so, I would be in soooo much trouble.
Sue
srhykerd
Posts: 130
Joined: Sun Aug 27, 2006 6:26 pm

Re: Looking for some advise

Post by srhykerd »

That's a ditto for Melanie! Sue (Mel' mom)
cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:

Re: Looking for some advise

Post by cbe411 »

These are some good things to think about for sure... how to get them to the boards... to want to then go to camp and meet others...

I found the message boards on my own... then brought my mom here. I was and still am interested in learning anything and everything that I can about this injury. There are times that it makes me feel crazy or a bit overwhelmed... but then knowing what I know makes me feel better too! I am not on the boards as much anymore as my life is heading in a different direction these days (got a job, finishing grad school, etc.) and I am not allowing my life to revolve around my arm like it used to. Some people, as I have seen over the last few years though, have no interest in the message boards or even chatting with people who have the same injury. For me it was very therapeutic!! I went to the UK a few years back for their gathering... they are twisted and it is GREAT! I wish that people here had that sense of humor about the injury... I'm not saying I'm glad to have it, but I do so lets get on with life... It took me a few years to have this attitude, but now I can't picture life any other way.

ok... sorry for rambling... how to get them to come here?? That one I will have to think about a bit!! Tell them I am here and I am nuts! :)

I really think that it is something you have to have an interest in and some just don't! It certainly is not something that you can make anyone do! There is some whining here but there is so much support, through the good and bad!

I would like to plan a TBPI Vegas weekend or something of that nature... fun, relaxing, no schedules at all! I do not have the time right now... and I am not sure how many others would be interested... I know some adult OPBI are!

We are looking around Melbourne FL I believe... that general area. We are only in the early planning stages and have not yet found a place...

Open for any and all suggestions... thanks for letting me ramble!!

Courtney
lizzyb
Posts: 809
Joined: Sun Nov 04, 2001 6:36 am

Re: Looking for some advise

Post by lizzyb »

Well, as you know Court, me and Neil were definitely coming over to the camp this year, but we had such a pile of problems with all sorts of things going wrong that we just couldn't make it. We kept trying right up to the last minute and very nearly left here on a flight 15 hours before camp was due to start but ...well...I think I told you what happened. We certainly weren't in the right frame of mind after that..anyway...saw THIS in your post above:-

> I would like to plan a TBPI Vegas weekend or
> something of that nature... fun, relaxing, no
> schedules at all! I do not have the time right
> now... and I am not sure how many others would be
> interested... I know some adult OPBI are!

I would definitely be up for a trip to Vegas! Even better with no plans or schedules (I'm not very good at those!) so if you do get the idea to float, let me know and I'll come over. See if we can get a few of the UK nutters to come over too...it could be a blast! I need something to look forward to!

Liz x

PS This thing about people not wanting to interact in any way shape or form with others with a TBPI...I can fully understand it.

Did you know it took me a good 5 years before I even bothered meself to talk to anyone else with this injury??

I had plenty of opportunity..Neil and I worked on the Bike Shows and Rallies throughout the summer for a11 those years, and every now and again someone with a TBPI would turn up in the stall, but I never, not once talked to them or told them I had the same injury.

Still don't know why to this day that I did that.

It would have saved me from years of isolation with this if I had taken the plunge and got talking, but I just couldn't. I suppose I had to feel comfortable with talking about it to others in the same situation..dunno...all I do know is when I first got on the Internet, and found Jen, Hazel and Mikey on UBPN, it all fell into place and suddenly, I could interact, talk and share stuff about this injury and how it made me feel.

Now look at me...I can't shut up now!! lol

So, have patience folks. :0) That old saying about leading a horse to water, but not being able to make it drink is a good one..people can't be forced. They have to come to this in their own time. I think Court's idea of a less formalised more 'adult' meeting/social is a bluddy good one and could well bring a few people out of the woodwork...!
ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: Looking for some advise

Post by ptrefam »

Well I did want to come. I really enjoy all the people here, whining and otherwise. I usually find the whining is well deserved and not many stay at that point for long.

But, really for us Labor day weekend is hard. School starts right about then. So if the younger kids come they would have to miss school or be really tired the first couple of days. Also, Dustin was getting things ready for college. Must say he's good at procrastinating. He still had books coming 2 weeks after school started. Which I suppose was because he hadn't decided which school to attend until the week before it started.

Really, I think he and Court had a good visit when we met her in Mayo. Course I pulled a fast one there, he didn't know I had it set up. Don't think he still knows for sure. I know he would enjoy meeting you all but he is focused on being as normal as possible. So, that means hanging out with "normal" people. Not that he is mind you, after all he is 20. After he came back mentally from the Brain trauma he seems to have a great fear that people will think he is handicap, especially mentally.

Sue
dennystocks

Re: Looking for some advise

Post by dennystocks »

I am here in mi and florida and sound fun i would rather go in the colder months though January-April somtime find the sunshine warm up the arm{lol} I would like to meet others it would be fun
cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:

Re: Looking for some advise

Post by cbe411 »

Denny you are in Owosso??

I live in the Detroit area and am originally from Saginaw... let me know if you want meet up sometime...


Lizzy... you and I can plan a Vegas trip! I bet we would have an outright blast!!

Courtney
Joy in FL
Posts: 357
Joined: Sun Nov 04, 2001 8:36 pm
Location: Georgia

Re: Looking for some advise

Post by Joy in FL »

Courtney, the boating group that my husband and I belong to have had several events at a place called River Ranch. Here is a link to get an idea of all they have to offer... http://www.wgriverranch.com/

They are very accomodating to groups. There is a lot to do on property. Just a place to check out.
Joy in FL is now living in Georgia!
Left TBI on October 31, 1991
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