Hello, I'm Cassandra's mom she is a beautiful 12month old with Right arm Ob.BP(ROBP). Very Long story short- she got stuck and had the cord wrapped twice around her neck and was dying. The had to pull or we wouldn't have our first (IVF) baby! She had absolutely no movement for the first 4 months and now has limited forward abduction and shoulder stability and wrist flexion. However, she has no finger extension or grasp. I don't know the lingo yet, what is TT?
Thank You!
New Here!
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: New Here!
Hi,
Welcome to the message boards.
TT is Triangle Tilt, it's a surgery done for the muscles/tendons...
I don't know much about it, never had that one done and it's a term that one surgeon uses, though may be done by others who just call it by the tendons they operate on.
There are no dumb questions and feel free to post on any board, we are all here to offer help/advice.
Marieke (31, LOBPI)
Welcome to the message boards.
TT is Triangle Tilt, it's a surgery done for the muscles/tendons...
I don't know much about it, never had that one done and it's a term that one surgeon uses, though may be done by others who just call it by the tendons they operate on.
There are no dumb questions and feel free to post on any board, we are all here to offer help/advice.
Marieke (31, LOBPI)
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: New Here!
Hi
Welcome to the Message Boards.
I am glad you found us. Don't worry about the lingo most people did not understand it when they found all of us.
Kath robpi/adult
Welcome to the Message Boards.
I am glad you found us. Don't worry about the lingo most people did not understand it when they found all of us.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Drake's Mom
- Posts: 70
- Joined: Mon Jun 11, 2007 3:59 pm
Re: New Here!
WELCOME!:)
Thanks for the input on the "first time to Mayo clinic" post. I have pretty much decided to plan to stay until the weekend. His first appt. is on a Wednesday with Nancy Kuntz.
I am still trying to figure out all the terms also! Since surgery was never mentioned by his doctors i am just learning about all the various surgeries too.
Teresa
Thanks for the input on the "first time to Mayo clinic" post. I have pretty much decided to plan to stay until the weekend. His first appt. is on a Wednesday with Nancy Kuntz.
I am still trying to figure out all the terms also! Since surgery was never mentioned by his doctors i am just learning about all the various surgeries too.
Teresa
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cassidysmom
- Posts: 167
- Joined: Mon Feb 05, 2007 8:56 pm
Re: New Here!
Hi there Cassandra's mom..
I'm Dawn,Cassidy's mom. Welcome!...sorry we have to meet under these circumstances....but you're in the right place, the people here are great and the best support you could ask for...
My daughter Cassidy is 16 months old and also has a ROBPI...Cassidy had her primary surgery in February.
I look forward to getting to know you...and don't worry about the lingo,you'll catch on quick
Dawn
mommy to Cassidy 16 months ROBPI
I'm Dawn,Cassidy's mom. Welcome!...sorry we have to meet under these circumstances....but you're in the right place, the people here are great and the best support you could ask for...
My daughter Cassidy is 16 months old and also has a ROBPI...Cassidy had her primary surgery in February.
I look forward to getting to know you...and don't worry about the lingo,you'll catch on quick
Dawn
mommy to Cassidy 16 months ROBPI