Details, details!
Tell us about camp!!!!!
Tell us about camp!!!!!
How was it?????
Details, details!
Details, details!
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Tell us about camp!!!!!
Too freaking cool! And fun! I posted a response to this on the other thread..
Marieke (31, LOBPI)
Marieke (31, LOBPI)
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Tell us about camp!!!!!
Mica, also read on the Camp Message Board too. I also posted there.
PLEASE please come to Florida in 2009 with Aria, Mica. I heard alot about her from Amy.
Oh yeah, Amy's Mom came to Camp and she, Lori,is one teriffic Lady! It is wonderful to meet such terific Moms.
Every Mom at Camp was someone you must meet, Mica.
HUGS all around,
Carolyn J
ps...I am very happy that everyone made it home safely!
TIRED is good!
Message was edited by: Carolyn J
PLEASE please come to Florida in 2009 with Aria, Mica. I heard alot about her from Amy.
Oh yeah, Amy's Mom came to Camp and she, Lori,is one teriffic Lady! It is wonderful to meet such terific Moms.
Every Mom at Camp was someone you must meet, Mica.
HUGS all around,
Carolyn J
ps...I am very happy that everyone made it home safely!
TIRED is good!
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Tell us about camp!!!!!
We are already psyched about the next camp - and it's 2 years away!!!
I'm so glad you had a good time!
I'm so glad you had a good time!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Tell us about camp!!!!!
Marieke
Great photos, I have not even downloaded mine.
I just kept taking pictures at random and I think I may not even be in one on my camera LOL.
Boy did we have fun. I was so happy to finally met you and some of the other people I had not met before.
I love all the new friends we made this year.
Camp makes bpi families one big community and one that brings so much fun when we are all together.
Looking forward to 09.
Kath robpi/adult
Great photos, I have not even downloaded mine.
I just kept taking pictures at random and I think I may not even be in one on my camera LOL.
Boy did we have fun. I was so happy to finally met you and some of the other people I had not met before.
I love all the new friends we made this year.
Camp makes bpi families one big community and one that brings so much fun when we are all together.
Looking forward to 09.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Tell us about camp!!!!!
Kath,
I made sure to try to get pics of all those I spoke to, but am missing some with Josh, Ryan...
I got you a few times though I like the Myotrac one!
Marieke (31, LOBPI)
I made sure to try to get pics of all those I spoke to, but am missing some with Josh, Ryan...
I got you a few times though
I like the Myotrac one!Marieke (31, LOBPI)
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Tell us about camp!!!!!
Thanks Marieke
That is the photo as I found my triceps work.
Now I have to get them all under control.
Some of the movements I gained at camp are still functioning.
I am in shock.
Kath robpi/adult
That is the photo as I found my triceps work.
Now I have to get them all under control.
Some of the movements I gained at camp are still functioning.
I am in shock.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi