Miracle Flights For Kids: www.miracleflights.org (702) 261-0497 or (800) 359-1711.
Care Force: Bob Jack (281) 261-6626, PO Box 3816, Humble, TX 77347
Northwest Airlines Kid's Care Program: Fax Jennifer Geiger at (612) 726-3942 with your request.
Southwest: Tracie Martin (214) 792-4103 and fax (214) 792-3799
American Airlines Miles For Kids: (817) 963-8118, Fax (817) 931-6890
Continental Airlines - Meeting Works Department: (800) 468-7022 , Agreement # DK56VM (as of 9/1/07)
National Patient Travel Center: www.patienttravel.org (800) 296-1217
Mercy Medical Airlift: (800) 296-1217
Angel Flight SE: (800) 352-4256
Air LifeLine: (877) 247-5433 www.airlifeline.org (has special arrangements with Methodist Hospital)
World Life Foundation: (800) 289-5433
Wing of Freedom: (407) 363-1991
Angel Flight?
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Angel Flight?
Hi, our family was just approved for medical flight assistance thru SWA. I was told that they could offer us a discount, but no longer provided free tickets. We received a 400 dollar discount... called LUV Vouchers, every little bit helps, hope this info does.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Angel Flight?
Melanie,
Keep calling every place given in the above posts. You have gotten "it", girl!! There is no such thing as a Mother to be a pest. This is your Angel's life and who cares if they know you by your 1st name.this is good training for Angel's school years ahead of you , believe me.
HUGS!!
Carolyn J
adult LOBPI
Keep calling every place given in the above posts. You have gotten "it", girl!! There is no such thing as a Mother to be a pest. This is your Angel's life and who cares if they know you by your 1st name.this is good training for Angel's school years ahead of you , believe me.
HUGS!!
Carolyn J
adult LOBPI
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Angel Flight?
Just a note: THANKS TO ALL OF YOU!!! We found some help and got the tickets needed to get up there! YA!! WhoooHoo!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Angel Flight?
Congratulations!
Good job, Melanie!:)
HUGS all around,
Carolyn J
Adult/LOBPI
Good job, Melanie!:)
HUGS all around,
Carolyn J
Adult/LOBPI
Carolyn J
Adult LOBPI
Adult LOBPI
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Sidney's Dad
- Posts: 10
- Joined: Wed Feb 07, 2007 12:02 pm
Re: Angel Flight?
You might not have to go all the way to philly. We live in the Tampa area. After carefull research we went With Dr. John Grossman in Miami. It is true that his bedside manner is less than desirable, but that's why He has Lorna. She Is great to work with. I belive he is one of the best in the field. My daughter has had an amazing response to her primary. I still rember it, one of the longest days of my life she was in surgery almost twelve hours. C-5 and C-6 were completely ruptured and another nerve was completely amassed in a ball of torn muscle/scar tissue pinching it off. After surgery I rember Dr. Grossman stated he didnt know how she was doing half of what she was. He also scaled down her torticollis during surgery. I would not hesitate to recommend him. I hate the drive, it about five hours each way for us, but it better than traveling cross country for us. As a Matter of fact we have to leave in about four hours to go to see Dr Grossman and Lorna. Anything we can do to help just let us know. They have offices in New York, Miami children's Hospital, and Florida Baptist hospital. Just wanted to let you know there are options here too. Good luck to you in who ever you decide.
Message was edited by: Sidney's Dad
Message was edited by: Sidney's Dad
Re: Angel Flight?
Thanks Everyone for all the thoughts and support, you have all been really great! May God bless you all.....