New Here

[Tori'smom]

You all have such great information. My daughter is having TT sugery W/Dr.Nath on 9/19/07. I have read all of the posted messages and am now getting concerned about the procedure. I would love to hear from someone whose child has had the operation and is now getting out of the splint. How did your child handle having to wear the splint all of the time, and how are they doing at bedtime? I am worried since Tori will be starting Kindergarten next week. I'm sure all of the other kids will stare at her. We have tried to make the whole procedure a positive one for Tori. Tori did ok when she had to wear the Statue of Liberty Cast, but hated it and I'm afraid that this one is going to be worse, but then again it may be just myself who may not be able to handle it, I don't know, just worried and scared for her.I would also like to know if there are any other famlies in West Virginia that are going thru this or have already been there. Thank you

[cassidysmom]

Hi there

I'm sorry I don't have any info for you regarding the TT surgery but I noticed you were new here and I wanted to introduce myself..I'm Dawn..my daughter Cassidy is 16 months and has a ROBPI involving the C5,C6 and C7..she just went through the primary surgery six months ago...before that she was given Botox and casted in the "statue of Liberty" cast aswell....I hope everything goes well with Tori's surgery and keep posting your questions the people here are amazing!!

Dawn