Outreach
Re: Outreach
HAPPY TO GET MINE !!!!!!!!!!!!! MY FAVORITE ARTICLE IS FROM THE POLICE OFFICER! HE IS A TRUE HERO IN MY MIND HE HAS SHOWN THAT ANY THING IS POSSIBLE1 I LOVE THE UBPN AND I WOULD NOT HAVE BEEN ABLE TO DEAL WITH OUT THIS WEB SITE. THE PEOPLE HERE ARE TRUE HEROS MOTHERS DAUGHTERS SISTERS BROTHERS FAMILY MEMBERS. THIS ORG HAS HELPED MY FAMILY AND SO MANY OTHERS! I CANNOT WAIT TO MEET SOME OF U AT CAMP! THANKS TO ALL WHO DOMATE THEIR TIME AND EFFORT TO PRODUCE THIS !
-
cassidysmom
- Posts: 167
- Joined: Mon Feb 05, 2007 8:56 pm
Re: Outreach
We got ours up in Canada...love it!! It's the first issue I have ever gotten and was so happy that Cassidy is in it!! what a great surprise!
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Outreach
Dear "mLynn",
I CAN"T WAIT to meet and H-U-G you too!
Carolyn J
ps...Kath, I can't believe you haven't recieved your OUTREACH yet!!! what a bumper...
Message was edited by: Carolyn J
I CAN"T WAIT to meet and H-U-G you too!
Carolyn J
ps...Kath, I can't believe you haven't recieved your OUTREACH yet!!! what a bumper...
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
-
JamieMarie'smommie
- Posts: 178
- Joined: Thu Apr 14, 2005 11:21 am
Re: Outreach
Still No outreach in New Hampshire. Amanda (mom to JamieMarie 2yrs old ROBPI)
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
-
marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Outreach
Kath, it makes no sense that I got mine and you still haven't gotten yours.. we are not far apart really...
Re: Outreach
I wonder if it would be feasible to offer an online version of the magazine as well as a printed publication.
It shouldn't be too hard to offer it as a PDF file.
Nancy, would you like for me to see if I could convert this to PDF so that it could be posted for those that don't get theirs, or whom don't get them quickly???
It shouldn't be too hard to offer it as a PDF file.
Nancy, would you like for me to see if I could convert this to PDF so that it could be posted for those that don't get theirs, or whom don't get them quickly???
-
JamieMarie'smommie
- Posts: 178
- Joined: Thu Apr 14, 2005 11:21 am
Re: Outreach
I was wondering if anyone else still had not received there print edition of Outreach or am I the only one??
Amanda Mom to Jamie Marie 2yrs old ROBPI
Amanda Mom to Jamie Marie 2yrs old ROBPI
Re: Outreach
Amanda,
Email me (nancy@ubpn.org) and I will check to see what address we have for you in the mailing list.
Nancy Birk
UBPN President
Email me (nancy@ubpn.org) and I will check to see what address we have for you in the mailing list.
Nancy Birk
UBPN President
-
JamieMarie'smommie
- Posts: 178
- Joined: Thu Apr 14, 2005 11:21 am
Re: Outreach
Nancy I just emailed you!