New Roll Call...

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
stanleyars
Posts: 11
Joined: Wed Nov 15, 2006 10:37 pm
Injury Description, Date, extent, surgical intervention etc: I have a LOBPI. No surgeries were performed as the injury was not well known at that time. In 2007 I found this website and was able to put a name with my injury. I debate having surgeries but have never seen a doctor for my injury. The secondary strain on my body has finallly caught up with me. I am only 26 and can't explain the amount of pain I feel in my back or shoulder to none BPI people. They do not understand the physical strain. I was blessed with a beautiful baby boy 10 months ago.....but he has become to reason for much of my pain. I will take pain any day then give up motherhood!

Re: New Roll Call...

Post by stanleyars »

I am Amanda, 24 years old, LOBPI, no Horners that I am aware of, Female
User avatar
smith727
Posts: 60
Joined: Mon Dec 20, 2004 11:18 am

Re: New Roll Call...

Post by smith727 »

Scott Smith, 36 years old with a right side obpi.
User avatar
Chris88
Posts: 45
Joined: Wed Jul 11, 2007 4:21 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI C5 to C7
No operations to this point.
Location: Savannah, GA

Re: New Roll Call...

Post by Chris88 »

I have LOBPI, No Horners, 37 years young, male.
"Success is peace of mind, which is a direct result of self satisfaction in knowing you made the effort to do the best of which you are capable."
Coach John Wooden
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: New Roll Call...

Post by patpxc »

Pat
Age 54
ROBPI
No Horners
I think I beat Kath for secondary injuries
2 grown kids
one beautiful 7 year old granddaughter
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: New Roll Call...

Post by Kath »

Pat
Come to camp and we can compare.
I'm still older... LOL...

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Amber
Posts: 1
Joined: Mon Jul 16, 2007 6:24 pm

Re: New Roll Call...

Post by Amber »

I'm Amber...and I'm new to this board! I'm a 20 year old college student from Oklahoma and I have a ROBPI. I don't think I have Horner's.
Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: New Roll Call...

Post by Joanie »

Welcome, Amber.

I'm glad that you found us, but sorry that you needed us. I'm Joanie. I've already signed in on this roll call, but I wanted to welcome you to the UBPN message boards. I learned from Carolyn that you can post on any message board, and that there are no dumb questions.

Joanie, LOBPI, 58 years
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: New Roll Call...

Post by Kath »

Welcome Amber
I'm glad you posted and happy for you that you found UBPN while you are so young.
If you have any questions at all post them.
Even is something seems silly it really is not!
There are no silly questions here.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Beckyerin
Posts: 104
Joined: Wed Aug 17, 2005 8:06 pm

Re: New Roll Call...

Post by Beckyerin »

My name is Becky, 27, from Oreland, Pennsylvania. I am ROBPI. I don't think I have Horners but My face is asymetrical a bit.

Just graduated from OT school and hope to be of some help to those with disabilties of all kinds.
CSMITH
Posts: 18
Joined: Fri Aug 25, 2006 10:12 am

Re: New Roll Call...

Post by CSMITH »

HELLO
MY NAME IS CONNIE I AM FROM MISSOURI. I AM A MOTHER OF TWO ONE WHO IS AUTISTIC,AND MY DAUGHTER, A VERY SMART GIRL. I DO NOT HAVE HORNERS AND I AM LOBPI.I AM ALSO A LITTLE NEW TO THE BOARDS.I DON`T POST MUCH.BUT HAVE LEARNED A TREMENDOUS AMOUNT.
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