Karen,
So sorry for what you are going though, hope you come home tomorrow. I will keep you in my thoughts as you heal and get better.
Hugs,
another Karen
Surgery Finished & back home
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Surgery Finished & back home
Karen,
Here is my vitual <<<<HUG)))) YOU ARE in my Continuing Prayers. You are a very brave woman!
Carolyn J
Here is my vitual <<<<HUG)))) YOU ARE in my Continuing Prayers. You are a very brave woman!
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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PuppetPeople
- Posts: 23
- Joined: Sun Dec 12, 2004 8:35 pm
Re: Surgery Finished & back home
Greetings All from my home in Chippewa Falls, WI !
Yes, I came home yesterday and am doing good so far. I did have to get a new PICC line put in my arm the other day. This time I asked if I could get a pill to help me relax before getting it done. My mom suggested that. It actually helped me relax and feel better while having it done. Had my first at home antibiotic dose in the line and it all went well! YAHOO! Maybe I am on my recovery road now.
Thank you to everyone for the well wishes, hugs and the prayers again. I told the nurses to cancel my reserverations for my next stay there, and to be watching for a book to come out about the tricks to surviving your multiple hospital stays. LOL They just laughed and said they would be waiting to read the book. Just kidding about a book, but I am sure a lot of us have come up with some different ideas and concoctions to help us out while in the hospital. Being with one arm to use makes me think of some goffy things that have actually worked for me.
Well, better close here. My computer time is done for the day. Take care and may everyone's hopes and dreams come true.
Hugs to all!
Karen
Yes, I came home yesterday and am doing good so far. I did have to get a new PICC line put in my arm the other day. This time I asked if I could get a pill to help me relax before getting it done. My mom suggested that. It actually helped me relax and feel better while having it done. Had my first at home antibiotic dose in the line and it all went well! YAHOO! Maybe I am on my recovery road now.
Thank you to everyone for the well wishes, hugs and the prayers again. I told the nurses to cancel my reserverations for my next stay there, and to be watching for a book to come out about the tricks to surviving your multiple hospital stays. LOL They just laughed and said they would be waiting to read the book. Just kidding about a book, but I am sure a lot of us have come up with some different ideas and concoctions to help us out while in the hospital. Being with one arm to use makes me think of some goffy things that have actually worked for me.
Well, better close here. My computer time is done for the day. Take care and may everyone's hopes and dreams come true.
Hugs to all!
Karen
Re: Surgery Finished & back home
Karen,
I'm glad you're home and on the way to recovery. I hope you continue on that road, and have no more setbacks.
Joanie
I'm glad you're home and on the way to recovery. I hope you continue on that road, and have no more setbacks.
Joanie
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Surgery Finished & back home
Karen,
I'm Glad you're home.
KEEP that Humor going. It was and continues to be,my best Survivor skill.(mine is alot of "Dark Humor")
HUGS,
Carolyn J
LOBPI/69
I'm Glad you're home.
KEEP that Humor going. It was and continues to be,my best Survivor skill.(mine is alot of "Dark Humor")
HUGS,
Carolyn J
LOBPI/69
Carolyn J
Adult LOBPI
Adult LOBPI
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Surgery Finished & back home
Karen
I'm so glad your home and even with all the procedures they missed cutting your sense of humor.
Besides there is less chance of infection at home.
Take care feel well and send me an autographed copy of that book! LOL...
Kath robpi/adult
I'm so glad your home and even with all the procedures they missed cutting your sense of humor.
Besides there is less chance of infection at home.
Take care feel well and send me an autographed copy of that book! LOL...
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
-
hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: Surgery Finished & back home
Karen, glad that you are home safe! I hope that you truly are on the road to recovery this time!!! No more stays in the hospital. Are you on a first name basis with the nurses yet?
Hugs,
Amy
Hugs,
Amy
Amy 28 years old ROBPI from MN
-
marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Surgery Finished & back home
Karen,
Glad to hear that you are back home. Get well fast.. NO more infections!
Marieke (31, LOBPI)
Glad to hear that you are back home. Get well fast.. NO more infections!
Marieke (31, LOBPI)
-
PuppetPeople
- Posts: 23
- Joined: Sun Dec 12, 2004 8:35 pm
Re: Surgery Finished & back home
Greetings To All!
Wanted to update on how things are for me now.
I have been getting better each day with the laughter of my kids and friends. I think there is a lot to say for laughter that should be bottled, someone could get rich off that one!
I go back to see Dr. at Mayo on August 14th and hope to be taken out of this pillow sling. I will be having x-rays, lab work, and meeting with both Dr.'s that did my surgeries, and the infectious disease Dr. too. So I will be there all day again.
I am still getting med's through the PICC line. That has become easier to accept now. Right now I am waiting for the FED EX guy to deliver a pain med prescription to me. They can't call it in because it is Oxycodone. We are leaving today to attend a family reunion up north and I don't have enough to get through the weekend. The pain is getting a little better but after the 3rd surgery it is still painful.
We are tent camping at the family farm and I am very excited to be seeing everyone again, it has been almost 8 years since the last one! I am packing up my older rocking chair to take with me to sleep in. It's the only thing I can sleep in still. Like I told my hubby,"have chair, will travel". LOL Am hoping it isn't too hot so I don't roast in my sling.
Will write when I return, as to how the weekend went. Take care and have a great rest of the week!
Karen
ROBP From WI
Wanted to update on how things are for me now.
I have been getting better each day with the laughter of my kids and friends. I think there is a lot to say for laughter that should be bottled, someone could get rich off that one!
I go back to see Dr. at Mayo on August 14th and hope to be taken out of this pillow sling. I will be having x-rays, lab work, and meeting with both Dr.'s that did my surgeries, and the infectious disease Dr. too. So I will be there all day again.
I am still getting med's through the PICC line. That has become easier to accept now. Right now I am waiting for the FED EX guy to deliver a pain med prescription to me. They can't call it in because it is Oxycodone. We are leaving today to attend a family reunion up north and I don't have enough to get through the weekend. The pain is getting a little better but after the 3rd surgery it is still painful.
We are tent camping at the family farm and I am very excited to be seeing everyone again, it has been almost 8 years since the last one! I am packing up my older rocking chair to take with me to sleep in. It's the only thing I can sleep in still. Like I told my hubby,"have chair, will travel". LOL
Am hoping it isn't too hot so I don't roast in my sling.Will write when I return, as to how the weekend went. Take care and have a great rest of the week!
Karen
ROBP From WI
-
hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: Surgery Finished & back home
Karen, thanks for the update! Glad you are feeling a bit better but i do hope the pain goes away asap!!! good luck on the 14th! I hope you finally get some good news!
have fun at your family reunion!!!
Hugs,
Amy 20 years old ROBPI from MN
have fun at your family reunion!!!
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN