Surgery Finished & back home

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Surgery Finished & back home

Post by hope16_05 »

Karen,
wow! You are dealing with a lot, so sorry to hear about the infection and the picc line. I havent had one but my dad has and they are not fun! I hope they got the infection or with the surgery and the antibiotics! Feel better soon!!! Did they give you an update on your shoulder while you were there?

I havent been able to watch my nephew as I had hoped. My sister actually lost her job due to torne rotator cuff. She needs therapy several times a week and a couple weeks off of work and they fired her. So she is also without a job. I do babysit when she has her appointment or wants to go out. Changing him was tricky but I managed! Now I am mostly out of my splint so changing him should get much easier, I just need to gain the strength in my hand again.
Thanks for reading my update! I need to update again since I had my 4 week post op appt on Tuesday. Havent gotten that far yet, maybe tonight.

I do hope that your infection clears up and you get good news for your shoulder!!!
Bug hugs! And wishes of a speedy recovery!
Amy
Amy 28 years old ROBPI from MN
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Surgery Finished & back home

Post by Kath »

Karen
You have really had a hard time and on top of it an infection. I hope all the drugs work and you will soon feel better and start to see some good results from your surgery.

I know what a picc line is because my daughter has MS and from time to time has to have one inserted. I feel so bad for anyone having to use one. I have had them a few times and don't do well the veins don't hold up.

I hope all goes well from now on and you have a speedy recovery from this infection.

Kath adult/robpi
Kath robpi/adult

Kathleen Mallozzi
PuppetPeople
Posts: 23
Joined: Sun Dec 12, 2004 8:35 pm

Re: Surgery Finished & back home

Post by PuppetPeople »

Hi Kath,

Thanks for the well wishes.

As of right now, midnight Sunday, I am fasting again. We are heading back to Rochester,MN about 8 AM. My incision is leaking again and the resident Dr. said he wants us to see Dr. Sanchez at 11 AM Monday.

So here we go "On the road again!". I am thinking that the new metal "ball" joint is going to be coming out of the shoulder. So keep the prayers going, please. I don't have access to the internet while there, so will update when I return home.

Karen
Karen McClune
Posts: 746
Joined: Wed Sep 10, 2003 4:58 pm

Re: Surgery Finished & back home

Post by Karen McClune »

Karen,

Best of luck today. Let us know how you are doing once you are home again.

My thoughts are you

Hugs,

Karen
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Surgery Finished & back home

Post by Carolyn J »

Karen,
You are in my thoughts and prayers today. I hope all goes well.

HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Surgery Finished & back home

Post by Judy-T »

Karen,
Sounds like you have had a rough time. My thoughts and prayers are also with you.Let us know how you are doing when you get home....Judy
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Surgery Finished & back home

Post by hope16_05 »

Sending thoughts and prayers your way!!! I hope every thing works out and your new joint does not have to come out.
Hang in there!
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
PuppetPeople
Posts: 23
Joined: Sun Dec 12, 2004 8:35 pm

Re: Surgery Finished & back home

Post by PuppetPeople »

Greeting From Methodist Hospital!
Finally got to use the computers in the library.
Yes, I was admitted on Monday afternoon again.
On Tuesday they did surgery again and took out the "ball" joint. I watched a few fireworks from an empty room with others,but only for a bit cause the pain returned.

Today I had another Picc line put into my arm. Hurt just as bad as the first time. First one was giving us trouble from the start.

I may be getting out tomorrow not sure yet. If any one is here I am in room 5415 if you feel like meeting each other.

Hope Everyone has a great day!!
Karen
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Surgery Finished & back home

Post by Kath »

Karen

I'M keeping you on the prayer list.
Sorry things have been so rough.
I hope this time things go better and your soon on the road to recovery.

I also hope the picc line stays in and is more comfortable. UGH... they are a horror.

Hugs
Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Surgery Finished & back home

Post by hope16_05 »

Karen, I am so sorry to hear that they took out the ball joint. Man what a bummer and such an unfun way to spend your 4th. I hope that your pain goes away asap!!! Wish I had my paycheck this week so I could come down and meet you! Not working for 5 weeks from my surgery has killed my budget :( Sending you some virtual hugs since I cant be there to get you the real ones.
Feel better!!!
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
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