desperate for help in Mineapolis/St. Paul, MN
desperate for help in Mineapolis/St. Paul, MN
My name is Doreen - I live in Mpls/St.paul. I am desperately in search of a rehab or physcial med doctor AND a physical therapist familiar for brachial plexus/tos disorders.. If ANYONE can offer suggestions in this area I would be so grateful. Sincerely, Doreen
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: desperate for help in Mineapolis/St. Paul, MN
hi doreen, maybe this will help, it's fropm the medical resorces section on the home page.
Minnesota BPI Specialists/Clinics
Ann Van Heest, MD
Approved contact information:
Gillette Children’s Specialty Healthcare
200 East University Avenue
St. Paul, MN 55101
phone: 651.291.2848
website: www.gillettechildrens.org
Also can contact Nurse June Hamerski
phone: 651.229.3889
Plus, mindy who sometimes posts here lives in Minnesota, if you click on her name you can mail her. She hasn't had much help medically but it might be nice to speak to someone who is relatively local....good luck in your search. Jen NZ
Minnesota BPI Specialists/Clinics
Ann Van Heest, MD
Approved contact information:
Gillette Children’s Specialty Healthcare
200 East University Avenue
St. Paul, MN 55101
phone: 651.291.2848
website: www.gillettechildrens.org
Also can contact Nurse June Hamerski
phone: 651.229.3889
Plus, mindy who sometimes posts here lives in Minnesota, if you click on her name you can mail her. She hasn't had much help medically but it might be nice to speak to someone who is relatively local....good luck in your search. Jen NZ
Re: desperate for help in Mineapolis/St. Paul, MN
Hi Doreen,
My partner is tbpi from an accident on August 11, 2001.
He's been going to Sister Kenny rehab in Minneapolis.
We've broken some trail for you there. He is seeing
Dr. Spierer and she has set him up with a good PT and
hand therapist. They also have a great pool for water therapy. Feel free to email me privately and I would be happy to share any other of our experience with you.
This list is a great resource----all of our best education came from here and we've passed it along to Sister Kenny.
All the best,
Mary
My partner is tbpi from an accident on August 11, 2001.
He's been going to Sister Kenny rehab in Minneapolis.
We've broken some trail for you there. He is seeing
Dr. Spierer and she has set him up with a good PT and
hand therapist. They also have a great pool for water therapy. Feel free to email me privately and I would be happy to share any other of our experience with you.
This list is a great resource----all of our best education came from here and we've passed it along to Sister Kenny.
All the best,
Mary
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: desperate for help in Mineapolis/St. Paul, MN
I just want to thank all of you who have responded to my post. I can't tell you how much I appreciate it. I have been given some leads and will follow up on them. This place is great - and so supportive. Thanks again. Doreen
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: desperate for help in Mineapolis/St. Paul, MN
Just want to thank all of you who have given me some suggestions. I appreciate it so much - so many kind, caring people on this forum. Doreen
Re: desperate for help in Mineapolis/St. Paul, MN
Hi! My name is Mindy and I live in Northern MN I have a left TBPI from a car accident over two years ago.
The doctor at Gillettes does not see adults at all. Closest bpi doctor is Mayo Clinic in Rochester if you can get in. They are very pickey about insurance and I was told it would be a six month wait unless an emergency. I have no insurance and could not pay what they wanted so I never went.
My OT tried Sister Kenney but they told her they did not treat this type of injury.
I have never seen a specialist because I financially cannot afford one and it has been too long. If you want to talk e-mail me.
God bless
Mindy
The doctor at Gillettes does not see adults at all. Closest bpi doctor is Mayo Clinic in Rochester if you can get in. They are very pickey about insurance and I was told it would be a six month wait unless an emergency. I have no insurance and could not pay what they wanted so I never went.
My OT tried Sister Kenney but they told her they did not treat this type of injury.
I have never seen a specialist because I financially cannot afford one and it has been too long. If you want to talk e-mail me.
God bless
Mindy