Dr. Kozin/Scapula

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Locked
AlannahD
Posts: 234
Joined: Mon May 09, 2005 3:55 pm
Injury Description, Date, extent, surgical intervention etc: 7-year-old granddaughter, LOBPI

Dr. Kozin/Scapula

Post by AlannahD »

At Alannah's visit with Dr. Kozin, he said that her winging scapula was helping her obtain the movement that she has, and if it were fixed, her function would be affected. Anyone else been told the same? Thanks - CMB
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Dr. Kozin/Scapula

Post by Kath »

If my scapular was stable I don't think I would be able to move.
All the movement I have is from my shoulder and scapular.

Kath adult/robpi
Kath robpi/adult

Kathleen Mallozzi
LoriV
Posts: 91
Joined: Thu Feb 03, 2005 11:45 pm

Re: Dr. Kozin/Scapula

Post by LoriV »

Yes, we were also told that without the winging our sons range would be greatly diminished.
Ruthie's Mom
Posts: 17
Joined: Thu Feb 01, 2007 2:22 pm

Re: Dr. Kozin/Scapula

Post by Ruthie's Mom »

Yes, Dr. Nath and Dr. Shenaq told us the same thing about Ruthie's scapula. Nancy
User avatar
Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: Dr. Kozin/Scapula

Post by Tanya in NY »

Definitely Amber's ROM is lessened when we stabilize her scapula. Try it by stabilizing your child's scapula. Dr. Kozin has told us the same thing. You can strenthen the muscles around the scapula, but to do a surgery that would inhibit scapular movement is not something that is in our daughter's particular best interest.

Tanya in NY
Amber's Mom, ROBPI, 4 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Dr. Kozin/Scapula

Post by hope16_05 »

the only real way to stabalize the scapula is to fuse it to the spine so you would lose all movement because the splint isn't going anywhere!

I just had a tendon transfer last week to see if we can stabalize my scapula a little bit because for me when my scapula is more stable like when I lay down (it cant wing out) I have much better range and even a fair amount of strength. But sit up and the stability is lost and my range decreases greatly! So far the winging of my scapula is not evident in my back, I am not allowed to move my arm up so I have no idea if it still wings to the side or not.

I had this surgery to make movement easier and to decrease pain caused by my unstable scapula.

I would continue to strengthen the scapular stabalizers and go from there, if it caused her pain when shes much older then talk about correcting it.

hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
Locked