i am curious to know how common is it for obpi victims to also have horners. Does the presence of Horner's show that the damage to the nerves is severe? What nerve(s) are damaged in order for horners to be present? Sorry for all the questions but I was curious. My son has LOBPI and Horners syndrome.
Breonna, Joseph's mommy (8 months)
horners syndrome
Re: horners syndrome
When Frankie was born he had horners syndrome the doctors all said it happens in severe cases of BPI Frankie had C5, C6, T1 and T8 pulled out of the spinal cord it got better and is now only evident in pictures.
hope this helps Mare
hope this helps Mare
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: horners syndrome
I have Horner's and found a baby picture where I could see it for the first time.
It usually shows up when I am tired.
The right side of my face has less wrinkles.
I guess it did not matter as a young adult because we don't have wrinkles then... LOL...
The most annoying thing about the Horner's is that my face and ear are always cold.
As a child and even now I must cover that side of my face if it's cold out and when I am sleeping.
I use to pull the covers over my head as a child and my Mother kept pulling them off.
It was not until I was much older that I realize only one side of my face was cold.
Kath robpi/adult
It usually shows up when I am tired.
The right side of my face has less wrinkles.
I guess it did not matter as a young adult because we don't have wrinkles then... LOL...
The most annoying thing about the Horner's is that my face and ear are always cold.
As a child and even now I must cover that side of my face if it's cold out and when I am sleeping.
I use to pull the covers over my head as a child and my Mother kept pulling them off.
It was not until I was much older that I realize only one side of my face was cold.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi