Sunburn

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Sunburn

Post by brandonsmom »

Claudia and Kath,

I believe that Hair Brushing and Hair Cutting for that matter= sensory issues !!!

Gayle
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: Sunburn

Post by F-Litz »

I went to Arbonne to look at the ingredients and I found something curious.... it contains shea butter but in the description it says that it doesn't have nut oils... well shea butter comes from a nut! Maia is allergic to tree nuts so this definitely wouldn't work for her.

This is exactly the problem I had when looking for sunscreen for Maia... so many products said they were hypoallergenic but then they had nuts and coconuts in it... so how is that hypoallergenic?? I don't get it.

One has to be really careful with an allergic & sensitive child.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Sunburn

Post by Kath »

Gayle
I thought all the crying when I had my hair brushed was because my hair was soooo curly when I was young...LOL...
Both of my daughters had very curly hair and did not carry on the way I did... But they hated their hair brushed. I did far more complaining then they did....

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Sunburn

Post by Carolyn J »

...My "2 Cents"...
I always got sunburned on my left BPI arm,side of my face, neck very seriously, and quickly, too. Yes, this is all Sensory Intregration Issue related.

Other adults..Is tickling painful for you as it is form me? ..Just wondering.

Hugs all around,
Carolyn J
Adult LOBPI/68 ;)
Carolyn J
Adult LOBPI
parent needing help
Posts: 98
Joined: Wed Oct 05, 2005 8:16 pm
Injury Description, Date, extent, surgical intervention etc: 03/28/2000 OBPI. rc5-6 rupture, rc7-8 avulsion rt1 stretch. L humeral fx lc7 stretch
Location: Huntington, West Virginia

Re: Sunburn

Post by parent needing help »

we were told this, and all of those other "odd" issues were all related to the damage to the autonomic nervious system they suffered when the brachial plexus was being injured. Now, perhaps I was told this just to satisfy my questions, who knows. But there was along time without ozygen adn it makes sense to me.
Christy & Katie Chapman
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Sunburn

Post by hope16_05 »

Well, I got my first sun burn of the season, ouch! The funny thing is that the burn on my bpi arm did not show up for hours! It was still very pale and white when i left the softball feilds but now is a very brilliant shade of lobster red.

I have yet to find a sunscreen that actually works on me. I always burn right through it so I stopped wearing it as I hate the feeling. Cant stand lotions on me, they are so nasty. And since the sunscreen was not working anyway I stopped wearing it. Probably not smart but its what I did and now I am dealing with my burns. It was not a smart choice to wear a tank top and shorts to the games I was keeping score for. Only three hours in the sun and I am toasted!

Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Sunburn

Post by brandonsmom »

Amy,
If if makes you feel any better, sunscreens don't work for me either and I do not have a BPI !!! If I wear Sunscreen I burn twice as fast and a lot worse, so, I choose not to wear any either, I usually pay for it too, however, I was smart and the weather her was great yesterday and I went out with a long sleeve shirt on !! That was the smartest thing I have done for awhile !! GAYLE
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Sunburn

Post by hope16_05 »

lol Gayle, I wasnt that smart! I had a light jacket on but that didnt last long it got too hot!
Amy
Amy 28 years old ROBPI from MN
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: Sunburn

Post by F-Litz »

Amy there are a couple of alternatives for you now...
there is a non greasy spray...and also Neutrogena makes a dry to touch sunscreen (meaning that it completely dries and you don't feel it after it's on)... I haven't used them myself but I saw it at the Rite Aid yesterday.
jamielane
Posts: 62
Joined: Tue Jun 29, 2004 11:27 pm

Re: Sunburn

Post by jamielane »

Does anyone know where to get the sun protection shirts?
I saw a lady with one on and also on her child last year and thought that it looked goofy, BUT we are buying season passes to the water park this year and with the way Carson burns on his left side, he is just going to look GOOFY!

If anyone has the shirts I don't mean to insult you, it's just that I don't burn, my husband nor my other 4 boys burn so this is very new territory for me.

What about loud noises? Carson is terrified of them.

Thanks for any info!
Jamie
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