Hi everyone,
I have a question for all of you, Have any of your kids had the primary surgery as infants and only had that one surgery? I keep hearing about all these new surgeries that are done later in life....I was just curious if anyone has had success with only the primary surgery.
Thanks,
Dawn
mom to Cassidy 12 months
ROBPI
Only Primary Surgery??
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Lauren (Brooke's mom)
- Posts: 73
- Joined: Tue Aug 02, 2005 1:48 pm
Re: Only Primary Surgery??
Dawn,
I personally have never heard of a child only needing primary surgery. Reason being is that it takes the nerve so long to grow and innervate all of the muscles...and some muscles are innervated before others, contractures, internal rotation, and bony deformities become apparent over time. This is why children need secondary surgeries. Even most children who were not severe enough to need a primary surgery will need secondary surgeries due to the nerve regeneration issue described above.
Anything is possible, but from my understanding, it is very unlikely.
Hope that helps.
Take care,
Lauren
I personally have never heard of a child only needing primary surgery. Reason being is that it takes the nerve so long to grow and innervate all of the muscles...and some muscles are innervated before others, contractures, internal rotation, and bony deformities become apparent over time. This is why children need secondary surgeries. Even most children who were not severe enough to need a primary surgery will need secondary surgeries due to the nerve regeneration issue described above.
Anything is possible, but from my understanding, it is very unlikely.
Hope that helps.
Take care,
Lauren
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lrstuart33
- Posts: 8
- Joined: Thu Feb 08, 2007 2:47 pm
Re: Only Primary Surgery??
My daughter had only a nerve graft done at 5 1/2 months.
She had a stretch injury to C5 & C6. Her PT released her from needing PT at 1 1/2 years old. At around the same time we no longer had to go back for follow ups with her surgeons. She is now 5 1/2 years old and has complete use of her injured arm.
So, yes it is possible to only need nerve graft (primary).
Her surgeons were amazed at her recovery!
Leslie
She had a stretch injury to C5 & C6. Her PT released her from needing PT at 1 1/2 years old. At around the same time we no longer had to go back for follow ups with her surgeons. She is now 5 1/2 years old and has complete use of her injured arm.
So, yes it is possible to only need nerve graft (primary).
Her surgeons were amazed at her recovery!
Leslie
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Only Primary Surgery??
Not to sound daft, but if she had a stretch injury, what did they graft? Did she have tears or ruptures to other nerves or was the stretch the only diagnosis?
Thanks
-rich
Thanks
-rich
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cassidysmom
- Posts: 167
- Joined: Mon Feb 05, 2007 8:56 pm
Re: Only Primary Surgery??
Thank you Lauren for the info, it's kind of what I was afraid of....my doctor has never mentioned secondary surgery, I kind of just got wondering as I read all these posts about other procedures, oh well, day by day I guess.
Dawn
Dawn
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F-Litz
- Posts: 970
- Joined: Fri May 26, 2006 6:53 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
- Location: Ambler, PA
Re: Only Primary Surgery??
A little baby had surgery the day after Maia had her primary surgery. They found 3 avulsions, but there were pedicles there (little stumps) that they could attach a graft to. This amazing little girl did not need any of the secondary surgeries you read about she only needed a very quick decompression of the nerve going to her biceps and that was it. She's going to be 9 and is doing great!
We stayed friends with this family throughout the years and to be completely honest about this (and we've spoken about this many times), it was truly hard to understand why Maia with just partial ruptures needed so much work when this child with avulsions went on her merry way. She is absolutely blessed that she recovered so well and I'm just so happy that she didn't have to go through what Maia did. Surgery is a very tough road for everyone.
We stayed friends with this family throughout the years and to be completely honest about this (and we've spoken about this many times), it was truly hard to understand why Maia with just partial ruptures needed so much work when this child with avulsions went on her merry way. She is absolutely blessed that she recovered so well and I'm just so happy that she didn't have to go through what Maia did. Surgery is a very tough road for everyone.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Only Primary Surgery??
Good 'Mornin MOms,
Sometimes we forget that these Birth Injuries are all different to each Individual...
Have a grand Day,today ALL.
HUGS Heal!,
Carolyn J
Adult LOBPI/68 & Proud of it
Sometimes we forget that these Birth Injuries are all different to each Individual...
Have a grand Day,today ALL.
HUGS Heal!,
Carolyn J
Adult LOBPI/68 & Proud of it
Carolyn J
Adult LOBPI
Adult LOBPI
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lrstuart33
- Posts: 8
- Joined: Thu Feb 08, 2007 2:47 pm
Re: Only Primary Surgery??
Exactly right Carolyn! They are all different.
Rich to answer your question - after surgery, the surgeons said they found a stretch to C5 & C6. They removed the damaged part of the nerves and grafted nerves from the back of both legs.
Rich to answer your question - after surgery, the surgeons said they found a stretch to C5 & C6. They removed the damaged part of the nerves and grafted nerves from the back of both legs.