Everyone!!!!!!!!Post teen/adult
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Phillyking87
- Posts: 15
- Joined: Mon Feb 20, 2006 3:41 pm
Re: Everyone!!!!!!!!Post teen/adult
you scared
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Everyone!!!!!!!!Post teen/adult
Lawrence
This entire board is devoted to teens/adults with obpi.
Read some of the older posts and you will get to see how others with our injury are affected.
Welcome to posting again.
Kath Adult/robpi
This entire board is devoted to teens/adults with obpi.
Read some of the older posts and you will get to see how others with our injury are affected.
Welcome to posting again.
Kath Adult/robpi
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Everyone!!!!!!!!Post teen/adult
Lawrence there are many of us, you'll get responses soon, you'll see!
Marieke (31, LOBPI)
Marieke (31, LOBPI)
Re: Everyone!!!!!!!!Post teen/adult
I was born in philly, grew up in the suburbs(outside chestnut hill, germantown area). What part of philly are you from?
Becky(ROBPI, 27)
Becky(ROBPI, 27)
Re: Everyone!!!!!!!!Post teen/adult
Lawrence,
What do you want to know about us? I don't know how to reply to your post. I am a multi-faceted person, just like everyone else. I couldn't possibly tell you all about myself in a single post on this board. I agree with Kath. Read some of the older posts. That's a start at getting to know us. Come to Camp UBPN over Labor Day weekend and meet us face to face. That's another way to get to know us. You can read about the plans for Camp on the "Camp UBPN" message board.
Also, have more patience. I try to read the boards once a day, but I don't always get here each day. Some others are here less frequently than that. You called us scared after only five hours of waiting for a reply! I, for one, find that off-putting. It's true that you can catch more flies with honey than you can with vinegar.
I'm not trying to start an argument, or be like vinegar myself. I'm just trying to give you some good advice. I hope you'll take it.
Joanie, LOBPI, 58 years
What do you want to know about us? I don't know how to reply to your post. I am a multi-faceted person, just like everyone else. I couldn't possibly tell you all about myself in a single post on this board. I agree with Kath. Read some of the older posts. That's a start at getting to know us. Come to Camp UBPN over Labor Day weekend and meet us face to face. That's another way to get to know us. You can read about the plans for Camp on the "Camp UBPN" message board.
Also, have more patience. I try to read the boards once a day, but I don't always get here each day. Some others are here less frequently than that. You called us scared after only five hours of waiting for a reply! I, for one, find that off-putting. It's true that you can catch more flies with honey than you can with vinegar.
I'm not trying to start an argument, or be like vinegar myself. I'm just trying to give you some good advice. I hope you'll take it.
Joanie, LOBPI, 58 years
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Everyone!!!!!!!!Post teen/adult
Heyyyyy PhillyKing,
Did'ja know that you can click on anybody's name typed in Blue and it will bring up all of their posts and will detail their lives as posted on these Message Boards? It does save us older ones with "hand/typing discomforts"
from having to re-type everything again.
HUGS!
Carolyn J
LOBPI/age 68
Did'ja know that you can click on anybody's name typed in Blue and it will bring up all of their posts and will detail their lives as posted on these Message Boards? It does save us older ones with "hand/typing discomforts"
from having to re-type everything again.
HUGS!
Carolyn J
LOBPI/age 68
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Everyone!!!!!!!!Post teen/adult
I'm 26, LOBPI. Welcome!
Re: Everyone!!!!!!!!Post teen/adult
A late Welcome is better than none right? 
Kimberly LOBPI 39
Kimberly LOBPI 39
Re: Everyone!!!!!!!!Post teen/adult
Hey Philly King. I saw you with the basketball on your my space page. My son watched the clip over and over. He has ROBPI and has very little recovery. Keep up the good work. I was in Philly this weekend, Jody had an appt. with Dr Kozin. I live in VA now, but am from South Jersey. Right over the Betsy Ross Bridge.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Everyone!!!!!!!!Post teen/adult
Heeeeyyyyy PHILLYKING,
How are you? What are 'YA doing these days? College or what? I miss you!
HUGS,
Carolyn J
How are you? What are 'YA doing these days? College or what? I miss you!
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI