So if I call my congressman what do I say?

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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kissygoose

So if I call my congressman what do I say?

Post by kissygoose »

I mean, I just can't imagine there is anything they can do. I know I need to find another attorny if I can (mine still hasn't called me back). The more I think of it though the more I think that maybe I don't deserve SSD. At least not yet. I can still function. I even thought about taking a part time job at a gardening nursery. I just don't know anymore.
ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: So if I call my congressman what do I say?

Post by ptrefam »

I just called Senator Kohl's office. I said that we were having a problem with the SS office. They said sure we have the form. I can send it out today, you have to fill it out and return it and we will contact the SS office. Then they sent us a letter to let us know that they had sent the info to the SS office. Our problem was that they weren't making a decision on Dustin. It had been 284 days since we filed. They thought that if they waited long enough he would recover enough for them to deny him. But, due to his accident he has other issues besides the TLBPI.
Sue
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: So if I call my congressman what do I say?

Post by Carolyn J »

Christina,
YOU DO DESERVE SSD and don't let anyone deter you from fighting to get it! That's
"depression" talking to tell you that negative thinking!!

I repeat, take a break, than contact your Senator. He's probably listed in yuour phone boiok or call your local Library for his name.

YOU HAVE TO DO THIS FIGHT YOURSELF, no one can do it for you!

Keep on, Girl, youo CAN do it!

HUGS
Carolyn J
Adult LOBPI/68
Carolyn J
Adult LOBPI
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: So if I call my congressman what do I say?

Post by brandonsmom »

Christina,

Come on now, Girl !!! You know you deserve SSD !!! You have to fight to get it...you can and you should. Don't let anyone tell you differently. I too agree with Carolyn that you need to talk to your therapist about this....you are slipping away on us and I hate to see it. My son is 8 and doesn't get SSI or SSD, but I will tell you when he turns 18, if he needs too, he will be there applying and I will be telling him the same thing.

If nothing else do it for the kids? Have you checked into getting some respite care, care for the kids, that you don't have to pay for, the state pays for them to come to your home, or you can take the kids to them.

I had it when Brandon was little, because I was having major issues !!! I snapped on a DCFS worker after someone called on me because they said I never took my kid (BRANDON) to the doctor...Okay, I had just gotten home from therapy ( I Was there 3 times a week) when they pulled up, I had all four of the kids in tow and I lost my mind on her. Before she left, she approved me for 32 hours a week to use between the four kids. It saved my life and probably my marriage !!! It was impossible to fit everything in at once. I only got it for a year, but I really did save me.

PLEASE, I beg of you to check with your therapist to see what can be done about getting you some respite so that you can do things for you !!!

Sorry to Rant and Rave, but I have lived in your position and it is NO FUN !!! I do not even remember my son's FIRST BIRTHDAY !!!

GAYLE mom of Brandon ROBPI
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