Greeving process again? I hope it doesnt last as long this time around!!
Courtney
update...
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
update...
Had my post-op follow up today at Mayo!! I have what I have!! Nothing that they can do is really worth it, huge risks with very little to gain! So it is what it is!! Oh well I guess, I tried and have run out of options!!
Greeving process again? I hope it doesnt last as long this time around!!
Courtney
Greeving process again? I hope it doesnt last as long this time around!!
Courtney
Re: update...
I'm sorry to hear it didn't work out the way you wanted.
I'll pray your acceptance and self love comes back to you swiftly so you can move forward happily in life's great adventure.
I'll pray your acceptance and self love comes back to you swiftly so you can move forward happily in life's great adventure.
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: update...
Hey Court,
I am sorry too that things turned out the way they did. Take the time you need to accept it. Just remember that you have friends and family who support you and love you.
Good luck,
Marieke
I am sorry too that things turned out the way they did. Take the time you need to accept it. Just remember that you have friends and family who support you and love you.
Good luck,
Marieke
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: update...
Courtney,
You have been an inspiration to us all in our UBPN Family. You will get thru your "grieving process" OK, kiddo. Please share with us, we all learn from you.
HUGS,
Carolyn J
Adult LOBPI
You have been an inspiration to us all in our UBPN Family. You will get thru your "grieving process" OK, kiddo.
Please share with us, we all learn from you.HUGS,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
Adult LOBPI
Re: update...
Hey Court
I got the similiar results from my Mayo trip Drs felt the was less reward than the risks to do anything more. Kinda disheartening but I think deep down I already knew it I just needed someone to reaffirm I had done everything I could do. My accident was in Aug99 kinda wondering where to go from here. Sometimes I think life would be easier with my flail arm but not sure if I could go through with amping it either. I guess we all get to a stopping point but in a way its a relief to know surgeries are over and you can go on with your life.
John
Message was edited by: John K
I got the similiar results from my Mayo trip Drs felt the was less reward than the risks to do anything more. Kinda disheartening but I think deep down I already knew it I just needed someone to reaffirm I had done everything I could do. My accident was in Aug99 kinda wondering where to go from here. Sometimes I think life would be easier with my flail arm but not sure if I could go through with amping it either. I guess we all get to a stopping point but in a way its a relief to know surgeries are over and you can go on with your life.
John
Message was edited by: John K
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: update...
Thanks for the support!!
John I agree with you, I kinda knew this but was HOPING for better! We celebrated tonight, Jeff and I, dinner at Red Lobster!! Celebrated what? NO MORE SURGERIES!! After 9 I know that is a good thing!!
Courtney
John I agree with you, I kinda knew this but was HOPING for better! We celebrated tonight, Jeff and I, dinner at Red Lobster!! Celebrated what? NO MORE SURGERIES!! After 9 I know that is a good thing!!
Courtney
Re: update...
Hello Courtney,
I don;t even know you, but i have read of you. I find your positive outlook on this life, refreshing and encouraging. 9 Operations OMG!
Being a new MOM to a 25year old TBPI, I wish to show a positive out look but also do not want to give a false sense of hope to my son.
At this point we don;t even know the extent of his nerve damage but i sense it is bad due to the Pain level and no function at all. Time will tell.
I am curious. Have you gained any function after 9 operatons ?
I don;t even know you, but i have read of you. I find your positive outlook on this life, refreshing and encouraging. 9 Operations OMG!
Being a new MOM to a 25year old TBPI, I wish to show a positive out look but also do not want to give a false sense of hope to my son.
At this point we don;t even know the extent of his nerve damage but i sense it is bad due to the Pain level and no function at all. Time will tell.
I am curious. Have you gained any function after 9 operatons ?
Re: update...
Sending lots of best wishes and prayers to you Courtney.
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Christopher
- Posts: 845
- Joined: Wed Jun 18, 2003 10:09 pm
- Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02
Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed
BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.
Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)
"Do what you can, with what you have, where you are."
~Theodore Roosevelt - Location: Los Angeles, California USA
Re: update...
Courtney,
My heart goes out to you. I know I have exhausted every surgery possible but I still yearn for more return of function (who doesn't), and can't imagine what I'd feel if one of those surgeries didn't work. I'm proud of you for trying to make the best out of what cards you've been dealt!
Be well, be strong.
Chris
My heart goes out to you. I know I have exhausted every surgery possible but I still yearn for more return of function (who doesn't), and can't imagine what I'd feel if one of those surgeries didn't work. I'm proud of you for trying to make the best out of what cards you've been dealt!
Be well, be strong.
Chris