Anyone else with a Bilateral OBPI

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: Anyone else with a Bilateral OBPI

Post by Mica »

Oh my goodness, thank you for that information! We've been wondering about the sitting, crawling and walking. She can't hold herself up when she sits, and we were just talking about that yesterday. We figured it was her balance - it's good to know that is normal for her injury and that things will happen, just later. We can deal with later.

She gets all her bandages off on February 28th, and not a minute too soon! She's so bored because we can't really play with her like we can without her being wrapped up like a mummy.

I'm sure it will be hard to see her right arm completely paralyzed again... The primary surgery is pretty much 10 steps backwards to (hopefully) take 30 steps forward. Time will tell. We had a wonderful, wonderful surgeon who we trust completely - and, as you well know, that's half the battle.

I'm so glad to have met you!!!

My e-mail address is m.hemingway@adelphia.net if you'd ever like to send pictures of your Olivia! :)

Mica
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:
Contact hope16_05

Re: Anyone else with a Bilateral OBPI

Post by hope16_05 »

not sure what you think about this idea but would either of you be interested in making web pages for your children? I have found that very helpful for myself! Sorry to be butting in here I do not have a bilateral injury but I do have an injury its to my right arm.
I like being able to look back and see how far I have come.
My website is www.freewebs.com/bpimn if you would like to check it out. and it is on freewebs so making it is super easy and free!

Just a thought.
Hugs,
Amy 19 years old ROBPI from MN
Amy 28 years old ROBPI from MN
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Logan's Mom (Natalie)
Posts: 6
Joined: Tue Feb 06, 2007 12:41 pm

Re: Anyone else with a Bilateral OBPI

Post by Logan's Mom (Natalie) »

Veronica-
See my last post under "our local paper wants to do an article". Trying to send you a ((((HUG)))), hang in there...

Sincerely,
Natalie
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Olivias mommy

Re: Anyone else with a Bilateral OBPI

Post by Olivias mommy »

This board is so GREAT! I wish that I had found it when Olivia was still a tiny baby. All the support- you guys have helped me heal more in the last 2 weeks than I accomplished alone in the previous 2 years! This board has made a difference in my life. I feel like I know you all!

Amy- a website is a great idea. I have been meaning to start a scrapbook- a website may be easier. Thanks for the great idea. And, by the way- I dont feel that there is any butting in here. You have been living with this injury for 19 years- I have so much to learn from you! How strong you must be!

Natalie- thanks for the (((hug))). I needed it. I remember believing the lies that the doctors and hospitals told me. I really believed, for over a year- that her injury would just resolve itself. If only they had told me the truth! You have been through so much, all you mothers with older kids. It is such an inspiration. It will be such a relief when I can let go of all this. I'm trying. Thanks for the post about your daughter- I worry that kids will be mean to her- it's great to hear that your daughter is so popular and active! It gives me hope!

Anyway- I just wanted everyone to know- this site has made a difference in my life. To know that someone else has been where I am and that they are okay now. It helps me not worry about my own daugher so much. And it helps me know that I am not completely crazy.

You are all so wonderful!
Veronica
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Anyone else with a Bilateral OBPI

Post by Carolyn J »

Hello Veronica, Natalie and all other new Mom's and Dads!

Welcome to our UBPN Family...we are all in this LIFETIME of CARE Family together and together we will all be informed and survive whatever comes. Besides ALL of the Message Boards(you are welcome to read & post on any Message Board)have a tremendous amount of information and emotional support, I hope you all continue Vent too, as much as you need too, all of us were, or are, where you are today. However, Venting is not a substitute for seeking Counseling if one is stuck in greiving, anger or Depression. By the way, if you think these wonderful sharing and caring parents and Adults with OBPI's are lifechanging, just consider attending UBPN Family Camp 2007 next Labor Day weekend in
Washington State.

When I attended my 1st Camp in 2005, it was sooo healing to see all the children's faces light up when interacting with others with the same type of injury & playing a sport too, sometimes for the 1st time. There was sooo much Joy around everywhere..it was very emotional too to meet and talk to other adults with this same injury for the very 1st time in my life(at age 67!!) Please consider it. The Board of Director's are trying very hard to keep it very affordable. Watch for details in the next issue of OUTREACH magazine and on the Camp Forum Message Board, or Home Page.

Hugs all around,
Carolyn J
Adult LOBPI, 68 & Proud of it!
Carolyn J
Adult LOBPI
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Karen McClune
Posts: 746
Joined: Wed Sep 10, 2003 4:58 pm

Re: Anyone else with a Bilateral OBPI

Post by Karen McClune »

If you aren't getting Outreach please send Nancy your name and address. She can be reached at nancy@ubpn.org.

We hope to see all of you at camp this coming Labor Day week-end here in Auburn, WA. South of Seattle.

Hugs,

Karen
UBPN Camp Cordinator
karen@ubpn.org
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