I haven't contacted these folks yet, but I'd imagine that they would want BPI injuries to be included in this study since those with nerve avulsions are kind of in between a spinal cord injury and a peripheral nerve injury. Anyway, I'll post more when I find out more.
Happy Spunky & Pain Free Holidays!!!
Christopher
http://uwcorr.washington.edu/
http://uwcorr.washington.edu/adult_recruitment.htm
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NOW RECRUITING!
Announcing a new study of pain and fatigue in adults with multiple sclerosis and spinal cord injury.
PURPOSE
Pain and fatigue are the most common symptoms reported by people living with multiple sclerosis (MS) and spinal cord injury (SCI). They interfere with employment, enjoyment of life and participation in important activities. Both symptoms can be treated with a variety of approaches, but we have a long way to go before we can say with confidence that pain and fatigue can be effectively treated.
It may be surprising to you, but rehabilitation professionals don't know much about who is likely to develop pain, to respond to medications, and what to expect in the long term when a person develops pain and/or fatigue. The most fundamental requirement for increasing our knowledge and developing effective treatments is availability of reliable, sensitive, and meaningful ways of measuring pain and fatigue, and their effects on day-to-day functioning. New statistical methods have become available that make constructing better scales much easier. We would like to utilize these new methods to improve measurement of pain and fatigue in people with MS and SCI.
RESEARCH ACTIVITIES
If you decide to participate in this study, we will ask you to fill out a survey that we will mail to you. This survey will ask you about your experience with pain, fatigue, sleep, participation in daily activities, your social support, and general mood and outlook. The survey will also ask for some basic demographic information, such as your age, gender, and education. The survey will take about one and a half hours to complete. You will then mail the completed survey back to us. Once we have received your completed survey, you will receive a check for $25 for your time and effort.
Participating in this research is completely voluntary. You may decide not to participate in this study, and you may withdraw from the study at any time. Your decision to withdraw will not affect your health care in any way. There are no penalties or loss of benefits if you choose not to take part in the study or if you decide to withdraw early.
more.....
Participate in new study of pain and fatigue in adults w/SCI - earn $25
- Christopher
- Posts: 845
- Joined: Wed Jun 18, 2003 10:09 pm
- Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02
Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed
BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.
Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)
"Do what you can, with what you have, where you are."
~Theodore Roosevelt - Location: Los Angeles, California USA
-
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Participate in new study of pain and fatigue in adults w/SCI - earn $25
Christopher
I contacted them this morning and received a prompt reply.
They will be sending me the forms shortly.
I have two relatives with MS and I will forward this information so that they can participate.
thanks
Kath (adult/robpi)
I contacted them this morning and received a prompt reply.
They will be sending me the forms shortly.
I have two relatives with MS and I will forward this information so that they can participate.
thanks
Kath (adult/robpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
- marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Participate in new study of pain and fatigue in adults w/SCI - earn $25
Think they'll take a Canadian?? I have TM which is a SPI and related to MS... I should email them and see...
Marieke
Marieke