Great News

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Mare
Posts: 708
Joined: Mon Mar 10, 2003 5:30 pm

Great News

Post by Mare »

Today was Frankie and my day we went to Ot and she held his hand putting pressure on the back and he can bend and straighten his fingers all of them it used to be just the pointer finger moved. She put him in a hand splint to keep the pressure on so he can keep moving them. He has also gotten movement in the arm going up and down but it has to be lying down (no gravity) he is now doing exercises using his skate board (I finally found a safe use for the thing )Also I called the insurance co about all these denial letters telling me I have to appeal it and they had no idea what's going on or why the letters are being sent but the bill was paid today by them. At least that's what they said today see what happens tomorrow. Hugs Mare
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Great News

Post by Carolyn J »

CONGRATULATIONS to Frankie!! Good work! Keep on keeping on, Kiddo, I'm out here rootin' for 'Ya.

Mare, keep double checking the Dr's Office confirms o YOU that it has recieved the Payment.

Loads of HUGS,
Carolyn J
LOBPI, 68 ;)
Carolyn J
Adult LOBPI
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Great News

Post by Kath »

Mare
I am so happy for you guys....

So does this mean Dave has been retired?
I must have missed something.

I am so glad he can move his fingers...WOW how exciting.

As for the insurance company that is a big STRESS relief.

Kath (robpi/adult)
Kath robpi/adult

Kathleen Mallozzi
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Great News

Post by brandonsmom »

MAre,
I am so excited for Frankie. Too bad Dave is gone. Thank goodness the insurance company said they paid the bill. Sometimes I think they don't know what they are talking about. Call back tomorrow and see if they tell you the same thing....LOL !!!! See I told you results are amazing......keep up the great work !!! GAYLE
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Great News

Post by hope16_05 »

Mare,
check out the pics on my web site and tell me if Frankie's new hand splint is similar to any of mine. I would think she has him in an mp blocking splint but I could be wrong. www.freewebs.com/bpimn then click on the photo album. THe hand splint I am refering to is blue and only covers my knuckles

Frankie would get along great with that splint design, I love mine and it allows me to use my hand with out worrying!

I hope he has more great news to share all the time!
Keep up the hard work Frankie!!!
Hugs,
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
kamren
Posts: 262
Joined: Sun Feb 15, 2004 7:19 am

Re: Great News

Post by kamren »

That is great news on both fronts!!!! What a relief on the insurance side.
Mare
Posts: 708
Joined: Mon Mar 10, 2003 5:30 pm

Re: Great News

Post by Mare »

Yes Carolyn dave is retired but we hang on to him in case something happens to Mitch. Frankie actually liked dave better he was softer and frankie had figured out how to use him as a pillow. This splint is hard plastic Hope and goes 1/2 way around his mid section then his arm is separate it to is molded plastic with the straps to hold the arm in place. To hold the arm in the air it has 3 coat hanger wires and two turn buckles coming out diagonally. There are two hand splints the one is on the splint its flat and the fingers get strapped down flat i that's for as long as he can stand it he says it makes them stiff then the other for now is just a CVS splint but the Ot put foam to apply pressure this allows him to bend and straighten he's has to do exercises in this one. Frankie has decided he wants to play the guitar he got his older brothers out last night and was messing with it I can see him getting so much more confidence doing things he would never have tried before things he always said he wasn't interested in I guess because he knew he couldn't do them. Its 6:30 am gotta get frankie up for Ot type more later Hugs Mare,Frankie, Old Dave New Mitch
rachelcasa
Posts: 729
Joined: Mon Apr 21, 2003 11:45 pm

Re: Great News

Post by rachelcasa »

Nice job!! That is excellent news. It's so nice to hear he is doing well. Did you ever get the splint figured out? I sure hope so!!
Keep up the great work.
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