Please keep us in your prayers (nonbpi)

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Cara
Posts: 497
Joined: Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc: My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Location: Indiana

Please keep us in your prayers (nonbpi)

Post by Cara »

I know I haven't been on the boards near as much as I used to. My daughter, Rosalynn,is almost 6. She had LOBPI. Surgeries at 1 adn 3 years of age. She has about 85% use of her arm. She went from an IEP to 504 plan this year. She is doing great. We have cut down to PT/OT once a month just to monitor where she is at and to beable to be proactive if she starts to loose any function during a growth spurt. Our second daughter Ayn is 18 mo old. She was delivered c-section and is healthy. We are expecting our third child. a month ago they found an abnormality in the baby's heart beat. This week they sent us for even more test and we got some very devestating news. The baby's heart only has 2 chambers instead of 4. This will require a serious of open heart surgeries after birth until age 3. Also her internal pacemaker is not fuctioning properly so she will need an artificial pace maker after she is born. This is not a good combination. There is a chance that she could have herat failure while still in the womb. Please keep us in your thoughts and prayers. Some of you have met Rosalynn at clinics or picnics. She is a very bright and loving little girl. She is taking all of this very hard. We debated on telling her, but we figured it was not going to be something we could keep form her.
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admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Please keep us in your prayers (nonbpi)

Post by admin »

Cara, I'm truly sorry to hear this and we'll most definitely keep all of you in our prayers. Please update us when you can. I hope you have good support around you.
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Marydroz
Posts: 26
Joined: Thu Aug 24, 2006 10:02 pm

Re: Please keep us in your prayers (nonbpi)

Post by Marydroz »

Cara,
You will be in my family's prayers.
Stay strong, take care of yourself.
Mary
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ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: Please keep us in your prayers (nonbpi)

Post by ptrefam »

You and your family are in our prayers also. Take care.
Sue
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admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Please keep us in your prayers (nonbpi)

Post by admin »

Cara.

You and your family are in my prayers, May God give you all strength to get through this difficult time. He can change things, so trust in him for your strength. He said "those that are troubled and heavy laden come unto me, and I will give you rest." All his promises are true so take this one and ponder it in your heart to help you each day.

May God Bless
Kathy W.
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Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: Please keep us in your prayers (nonbpi)

Post by Joanie »

Cara,

I am adding you and your family to my prayers.

Joanie
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Please keep us in your prayers (nonbpi)

Post by Carolyn J »

Cara,
You and all of your family are in my prayers.I have been where you are and I pray that you will take EXTRA care of yourself at this time.

HUGS to all of you today,
Carolyn J
Carolyn J
Adult LOBPI
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Please keep us in your prayers (nonbpi)

Post by Kath »

Cara
I feel so sad for you and your family.
I will add you to my prayer list.
My heart goes out to you and your family.

Kath ROBPI/Adult
Kath robpi/adult

Kathleen Mallozzi
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Please keep us in your prayers (nonbpi)

Post by brandonsmom »

Our thoughts and prayers are with you and your family.
Gayle and Family !!!!!
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AlannahD
Posts: 234
Joined: Mon May 09, 2005 3:55 pm
Injury Description, Date, extent, surgical intervention etc: 7-year-old granddaughter, LOBPI

Re: Please keep us in your prayers (nonbpi)

Post by AlannahD »

Am praying for you and your family - Camille B.
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