opinions?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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clarissaf
Posts: 33
Joined: Thu Jan 13, 2005 11:20 am

opinions?

Post by clarissaf »

Hello everyone! I guess my question is for those who are older and have gone through this. My son LOBPI is 7 years old (just turned 7). His father and I decided to give him a "break" from therapy. Demare was going three times a week for an hour, and that's not including all of the hours at home. We found him not wanting to cooperate with the therapists and he was getting really frustrated. I know that it's probably hard on him going three days out of the week for over a year. We are going to eventually put him back into therapy, but my question was do you think that it was a good idea to give him a break in the first place? We are still doing exercises with him at home.
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: opinions?

Post by marieke »

YES, especially if he is no longer cooperating. Kids need to take a break once in a while, and if you are doing some therapy at home still it's all good.
Does he participate in any sports? After school or weekends? Maybe he'd like to, and it would be good "therapy" that wouldn't lookt like therapy!

Just my opinion.
Marieke :) (31 yrs old, LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
jep98056
Posts: 322
Joined: Sun Apr 14, 2002 10:25 pm

Re: opinions?

Post by jep98056 »

Are there other exercises that could help keep his interest level? I seem to recall that swimming was added to my regular PT program at about that age. I looked forward to the swimming exercises as part of my therapy sessions.

John P.
clarissaf
Posts: 33
Joined: Thu Jan 13, 2005 11:20 am

Re: opinions?

Post by clarissaf »

Yes my son does participate in sports. He's currently playing soccer and takes karate. He was doing aquatherapy every Monday, but seemed to get tired of that as well. He likes to swim, but recreational.
claudia
Posts: 1241
Joined: Tue Nov 06, 2001 12:21 pm

Re: opinions?

Post by claudia »

Everybody needs a break. Let him just do sports. Seven is tough age...they really start to see their differences. He might just want to play with other kids instead of doing therapy. That's important too.

claudia
admin
Site Admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: opinions?

Post by admin »

Recreational swimming is great! Sports are great! Everything counts. Kids need breaks. Can you imagine what you would be like if you were in therapy 3X a week for 7 years? These kids need to be kids. My child completely changed once I got her out of center-based therapy and into LIFE!

We now have a therapist come to the house once a month to check progress and update our "home plan". We still do the good stuff (estim and bracing, etc.) and exercises but we just do them at home independently. One thing I've learned is that you can't forget about the arm (shift happens) but you can certainly change how and where you are addressing it.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: opinions?

Post by Kath »

I am all for taking a break and using home therapy that most children consider play.
When I was young all of the therapy was "play" and at home.
I never realized until I had children how much was therapy and not "normal" play time.

I get tired of formal therapy and have stopped going just because I did not want my personal space invaded anymore.
If an adult needs a break imagine how much a child needs one.
Sometimes children just need time to daydream and play the way they want to.
You can encourage sports, and play therapy.

Kath (robpi/adult)
Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: opinions?

Post by admin »

I think it's fine to take a break from formal therapy. You know your child and can evaluate how long a break to take and when it's time to go back. PT can be tiring and painful at times so I can't blame the little guy for needing a break!
Laura Barnes
Posts: 20
Joined: Wed Aug 30, 2006 2:43 pm

Re: opinions?

Post by Laura Barnes »

My daughter alyssa is 6ys and reached the point of no more about a year ago. She now get therapy once a week at school (we were driving an hour each way twice a week) for 1 hour, we do exercises at home, she is in soccar and girl scouts. We go yearly to a specialist in Albuquerque for an evaluation and he has told us that doing everything one our own has been ok.
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