children's book

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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admin
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children's book

Post by admin »

My daughter got chosen for star student of the week at school. I am going Friday to read two books and tell a little bit about her. She is in the first grade. She comes home quite often upset that someone has ask about her arm. I would like to find a book age appropiate, to read to the class about children being different. Or if there is something out there that would help them to understand about brachial plexus injuries that would even be better. Anyone have any suggestions? Thank you for your help.
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
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Re: children's book

Post by Carolyn J »

Hi Sierra's Mom,
How abouit Maria Shriver's book "What's Wrong With Timmy?"....I hope I got the title right...

HUGS,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
admin
Site Admin
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Re: children's book

Post by admin »

"Different Just Like Me" Lori Mitchell
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
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Re: children's book

Post by marieke »

I second, "different just like me"
Marieke
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
claudia
Posts: 1241
Joined: Tue Nov 06, 2001 12:21 pm

Re: children's book

Post by claudia »

I "third" Different Just Like Me

good luck,
claudia
admin
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Re: children's book

Post by admin »

THere is also a Veggie Tales book I like very much called " God made you special". Unsure of author.
natsmom
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Joined: Wed Jul 21, 2004 9:39 am

Re: children's book

Post by natsmom »

We just got 'My Friend Isabelle' and 'Susan Laughs' to share with my daughter's pre-K class (these may be a bit too young for 1st graders, but you can check out the content on Amazon.com). We had the same issue, kids were saying that Nat's arm was "broken". The only thing that was broken was my heart when she came home and told me that!

Good Luck!
Becky
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
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Re: children's book

Post by Tanya in NY »

I also recommend "Different, Just Like Me" by Lori Mitchell. I read it to my daughter's Pre-K class and they thought it was good. In fact, both the teacher and aide in the classroom commented that they hadn't heard of the book, wondered why they hadn't, and were now planning on ordering the book for the classroom.

It doesn't specifically mention BPI, but it mentions many "different" people (blind, wheelchair bound, etc.) and this little girl realizes that they are in fact, "different, just like me."

Great story for the classroom and at home.

Tanya in NY
Amber's Mom, ROBPI, almost 4 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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