Bone loss in OPBI arm

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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CarolynfromLA
Posts: 7
Joined: Mon Apr 04, 2005 8:15 pm

Bone loss in OPBI arm

Post by CarolynfromLA »

I just saw an X-Ray of my OPBI arm and hand (I thought I broke my little finger but it's just a bad sprain). Anyway, I was alarmed to see how thin the bone looked. I am 34 years old and have never been able to do more with my arm than to bend it at the elbow, and I have no use of my hand whatsoever, so all those years of disuse have led to extreme bone loss. The doctor said he had seen bones that bad a few times in 90 YEAR OLD LADIES! So I just want everyone who has as little function as I do to be aware and be careful. I'm going to ask my doctor next week if Boniva or some other osteoporosis drug might help, because though today's finger accident wasn't a break, I fear it's only a matter of time.
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Bone loss in OPBI arm

Post by Judy-T »

CarolynfromLA,
I fell a few years ago and broke my obpi pinky finger. It took so long to heal. Every injury in the injured arm takes longer than average to heal. Looking back I wish I would have taken more cacium into my system when I was your age.
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veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Re: Bone loss in OPBI arm

Post by veggiebug »

They told me that too when I broke my BPI arm a couple years ago, when I was about 24 years old. Which mad me choose to go for a free bone scan, and that opened my eyes. I started taking Viactiv calcium supplements.

I healed right on schedule, it did take a little longer due to my BPI but it wasn't too bad.

-Traci
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Bone loss in OPBI arm

Post by admin »

Hi! I was just up in Boston and saw Doctor Waters, thankfully my daughter who is 9 does not need any surgery to date!!! But I did ask him about her taking extra supplements of calcium and he not necessary!! So I wonder if maybe she should take extra calcium!!
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Bone loss in OPBI arm

Post by Carolyn J »

Hello SS,
I am a true believer that taking a supplement CAN"T HURT!!! They al;ways advise women to take a supplement to avoid Osteo--- anyway. That's my opinion & I am sticking to it!!
HUGS,
Carolyn J
[age 68 & loving it!!]
Carolyn J
Adult LOBPI
kissygoose

Re: Bone loss in OPBI arm

Post by kissygoose »

Oh my, I never thought about that. Granted I've never seen an x-ray of my arm. I do take a calcium supplement but not for my BPI arm. No one's ever mentioned taking it for that before. The only thing they told me was if I take a calcium supplement to take one with Vit D in it because you need it to help your body absorb the calcium.
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: Bone loss in OPBI arm

Post by Tanya in NY »

Makes sense about the decreased bone density. One way to PREVENT bone density loss is to do moderate weight bearing exercise. Well, for those who do not have any or limited function of their BPI arm, they aren't getting much movement let alone any weight bearing exercise of that arm, so this isn't a surprise to me. Any woman should be taking an extra calcium supplement along with enough vitamin D to allow your body to absorb the calcium (most calcium supplements also have to vitamin D in it). As far as a child taking extra calcium, that one I'm not sure of because too much of something can be a bad thing. I'm going to check with my daughter's pediatrician first, but what a great suggestion and topic.

Tanya in NY
Amber's Mom, ROBPI, 3 1/2 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: Bone loss in OPBI arm

Post by jennyb »

Careful with the calcium supplements, too much can cause kidney stones, it happened to me, ouch!!!!!!!!!! Supplements are NOT harmless, check online or with your pharmacist, here's a good site http://www.medscape.com/viewarticle/497826
In my case I just reduced my supplements right down, I have no use of my bpi arm anyway so to be honest if it breaks it really won't affect me that much, I'm more worried about the rest of my bones! Incidentally a radiologist recently commented that my non bpi arm had exceptionally solid bone, I guess that's one advantage of using just one arm :0)
Jen NZ
Good topic, it reminded me to get my 18 year old on supplements, she doesn't eat much dairy......
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Bone loss in OPBI arm

Post by marieke »

They can also cause constipation!
Marieke
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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