Traci--Veggiebug having your baby soon?

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Traci--Veggiebug having your baby soon?

Post by Carolyn J »

Hi Traci,
I want you to have a topic thread of your own so we can follow your journey as a new mom & have a place for you to post questions how we "older" BPI mom's did things. Also, I can't find the old thread you had & posted your address of your web site at one time. I personally would
LOVE to follow your journey.Also,new mom's coming here to get information will appreciate your posts too, I am sure.
You must be pretty close to Delivery Day now,huh?
Lotsa hugs to you and your husband,
Carolyn J
Carolyn J
Adult LOBPI
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Traci--Veggiebug having your baby soon?

Post by Kath »

Thanks Carolyn for posting this.

I am so glad and I hope Traci posts her website again soon and we can keep track of her and the baby.

Kath adult/robpi
Kath robpi/adult

Kathleen Mallozzi
Karen McClune
Posts: 746
Joined: Wed Sep 10, 2003 4:58 pm

Re: Traci--Veggiebug having your baby soon?

Post by Karen McClune »

Yes Carolyn thanks for posting this.

Traci, the very best to you, can't wait to follow the journey.

Love and hugs,

Karen
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Traci--Veggiebug having your baby soon?

Post by brandonsmom »

Hi Carolyn,
I bumped up your Traci Post on the general board. It has the website for Veggie bug's Baby......did you know that when you click on the person's name on a thread it will give you a list of recent posts that they have posted or replied too. And now the search actually works.....it's fun here again. You can find what you are looking for. Try it you will like it......Gayle :) HUGS TO YOU !!!
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Traci--Veggiebug having your baby soon?

Post by Carolyn J »

Thanks Gayle,
I can always count on you to help me learn new things & help me keeo some important topics bumped up for our new people.
HUGS back at you all,
Carolyn J
Carolyn J
Adult LOBPI
User avatar
veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Re: Traci--Veggiebug having your baby soon?

Post by veggiebug »

Hello Carolyn and everyone else too,

I think everyone has gotten access to my website again, but if not here it is.

http://www.babiesonline.com/babies/j/jonandtraci/

I'm doing well, and everyday I'm feeling more and more ready. Mostly because I believe I've begun to waddle now since my ligaments are so sore. And I can't wait to get the feeling back in my non-BPI fingers.

Last week I had a non-stress test and I was apparently having contractions regularly that day, and I'm 1 cm dilated. I can't wait till my test this week to see how everything is and if I'm any further. My hope is that these are signs I'll go early. But we'll see, and I'll have another Ultrasound next week to estimate his size.

Please feel free anyone, to visit my site. It's not much but I think it helps everyone to feel like they are part of the process with me.

Also thanks everyone for the well wishes, and I promise to keep in touch as things happen.

-Traci
User avatar
veggiebug
Posts: 257
Joined: Wed Mar 03, 2004 8:47 pm
Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention.
Location: Williamsport PA

Re: Traci--Veggiebug having your baby soon?

Post by veggiebug »

Nothing yet, but I do have a question for any adults who have had babies and can direct me a little.

How did you deal with IV's and blood pressure in the hospital? I went in for a non-stress test the other day and a nurse told me that I'm going to have to have something done on my BP arm, whether it's the IV or Blood pressure cuff. My thoughts are: I don't know the extent of my injury enough to tell her that one or the other would be fine to do on my injured arm. And it seems like a Catch 22. On one hand I know they won't get an accurate blood pressure reading off that arm. And if circulation isn't good what's the point to putting medications through the IV on my injured arm. Not to mention the thought of a needle in that arm gives me the heebie geebies.

Please help advise me on this ASAP. Since I have till Thursday when we make a more definite decision on when Jack is coming.

-Traci
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Traci--Veggiebug having your baby soon?

Post by Carolyn J »

Traci,
My advice is to get your Doc to briefly write a letter to take with you that states ALWAYS TAKE BP AND INSERT IV'S on your NON-BPI side. Other than that, wherever you do go for delivery those above words should be the first words out of your mouth and BE FIRM,ASSERTIVE & even SRTIDENT. Even teach Jon to INSIST. If the attending nurse/ assistent or whomever,doesn't comply with your wishes DEMAND to see the Supervisor Nurse on duty immediately. Raise a "stink" if you have too.We BPI-ers have to teach everywhere we go...it's a lifetime job!
Love and ((((HUGS))) to the 3 of you,
Carolyn J
Age 68 now!!
Carolyn J
Adult LOBPI
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Traci--Veggiebug having your baby soon?

Post by marieke »

Traci, I have had numerous IV's and BP readings on my BPI arm. The BP on that side is lower by about 5 points, not too bad and IV's I can only get put in in ONE vein on that side, the one place where the vein is good and it doesn't hurt.
I don't know how global your injury is, how much pain or sensation you feel in that arm... for IV's that can make a difference.
If I were you, I would get them to take your BP on your "good" side and "bad" side to see the difference (BTW, one side will be lower than tha other for EVERYONE, regardless of an injury or not, it's normal, just depends on how much lower).
I would have them put the IV on your good side if you feel too much "pain" on your BPI side. A lower BP reading will just keep them on their toes a iittle more and if they are aware of any differences BEFORE then it will be fine.
Hope this helps,
Marieke (LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Traci--Veggiebug having your baby soon?

Post by hope16_05 »

Hey Traci,
I dont have any kids but I would definitely say both BP and IV need to be in your good arm. I have had an IV in my bpi arm (I had surgery on my left wrist to remove a cyst) and they had to put it in my elbow instead of my hand so it was very uncomfortable for me. And have you ever tried a BP in your bpi arm? For me I will never make that mistake again, it hurt so bad to take the bp in my right arm and it just came out error any way. ggr, all that pain for nothing. My arm hurt for a day or two after that. Not cool! Fight until you get your way!
Hope all goes well when you welcome your new baby into the world!
Hugs,
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
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