You never know when you can help

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

You never know when you can help

Post by Kath »

Hi
Over the last few years UBPN has taken a major portion of my free time because I love it...
I am glad to see that I can help others in some small way.

In an effort to add some diversity to my so called retirement I joined Senior Citizens.
I debated going today but promised someone I would meet them there so...
I attended my third meeting.
My friend arrived first and waved me over to where she was sitting and introduced me to a friend of hers.
During the course of the meeting my friend needed something written down, she has some central nervous system issues so, I offered to write it for her.
She had never noticed my injury and when I said it's hard to believe that I started life with a paralyzed hand she was surprised.
Her friend said to me, "my granddaughter has a paralyzed hand and arm it's called Erb's Palsy"... Talk about blowing me off my chair...
She took my information and was going to check with her daughter in law...
She said her daughter in law is on top of everything so she must know about UBPN.
It is a small world...

Kath (adult/robpi)
Kath robpi/adult

Kathleen Mallozzi
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BIGJAVSMA
Posts: 396
Joined: Tue Nov 22, 2005 3:05 am

Re: You never know when you can help

Post by BIGJAVSMA »

Chills. what a small world it is.

Thanks for sharing, it's nice to hear the about the little things.

MArlyn
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Karen McClune
Posts: 746
Joined: Wed Sep 10, 2003 4:58 pm

Re: You never know when you can help

Post by Karen McClune »

Kath,

We sure live in a small world.

Thanks so much for sharing, I hope this mother is either already reading our post or starts to.

Hugs, Karen

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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: You never know when you can help

Post by Carolyn J »

Hi Kath,
Thanks for sharing this...we just never know...Please let us know if you hear back from either the gradmother or mom of our BPI girl. Wow! maybe she'll be able to have surgery and a functional hand like yours someday & not have to wait 50+ years ...LOL.
Hugs and have a good weekend.
Carolyn J
Carolyn J
Adult LOBPI
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Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: You never know when you can help

Post by Joanie »

WOW, Kath!! "It's a small world after all. It's a small, small world." Have more BPI children been born in recent years than when we were kids, or is it really such a small world these days? I hope it's just a small world.

Joanie
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:
Contact Tanya in NY

Re: You never know when you can help

Post by Tanya in NY »

This is wonderful that you guys connected!

Tanya in NY
Amber's Mom, ROBPI, 3 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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rachelcasa
Posts: 729
Joined: Mon Apr 21, 2003 11:45 pm

Re: You never know when you can help

Post by rachelcasa »

Kath,
It is amazing what a small world it is. And thank goodness for UBPN reaching out and helping others.
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