Jacksonville Mayo

Treatments, Rehabilitation, and Recovery
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kburr55
Posts: 8
Joined: Mon Dec 26, 2005 5:06 pm

Jacksonville Mayo

Post by kburr55 »

Has anyone been to Dr. Murray for a muscle/tendon transfer? I had the nerve transfer at Stanford 2 years ago with no deltoid improvement. I went to Rochester a year ago and they said to wait. SS has not come through so $ are a factor. I'm with my parents in Clearwater FL. I came here for ankle surgery which confined me to a wheelchair because of the tbpi. Nobody puts up with you like parents! Especially because I got osteomylitis so the healing is twice as long. Sorry....I'm getting off track...Any info on Jacksonville Mayo? Thanks, Kelly
EllenB
Posts: 604
Joined: Sun Jan 12, 2003 1:22 pm

Re: Jacksonville Mayo

Post by EllenB »

Hi Kelly,

I'll be interested in if anyone is familiar with any bpi expertise at Mayo Jax. We went to Rochester & everything I read seems to point to that location as "the" place to go within the Mayo facilities. Seems the different locations have different specialties.

Keep us posted.

Ellen
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Jacksonville Mayo

Post by admin »

The Scottsdale Mayo referred me to Rochester too. But I've been to Rochester and the Dr.s in Jax know it and have my complete file and still want to see me. I'm crossing my fingers that Jax can help. It seems alot of tbpi are in the south, hopefully they are expanding! Thank you for answering, Kelly
Ashley's mom
Posts: 15
Joined: Sat Apr 01, 2006 9:36 am

Re: Jacksonville Mayo

Post by Ashley's mom »

We live near Jacksonville and the Mayo clinic has an excellent reputation around here. I have not heard of a bpi specialist there, but would be very interested in taking my daughter (today is her 20th birthday). We are comtemplating a trip to Houston, but would rather drive 30 minutes instead. (By the way, the Jacksonville Orthopaedic Institute has the best ortho docs, period). Thanks in advance for information. Paula
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
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Re: Jacksonville Mayo

Post by hope16_05 »

Sending Happy Birthday to Ashley!
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Jacksonville Mayo

Post by admin »

Thank you for the vote of encouragement on the ortho Dr.s because that's the stage I'm at in recovery. Happy Birthday to Ashley. My appt is May the 11th and I will post the results. Thank you again, Kelly
(49 year old rtbpi)
kburr55
Posts: 8
Joined: Mon Dec 26, 2005 5:06 pm

Re: Jacksonville Mayo

Post by kburr55 »

I made my appt.w/ Dr. Murray and he wants to do a muscle/tendon transfer in August. He will be using the latisimus dorsi and the trapezeis (SP). He said it would give me some motion. I'd be able to lift my arm at the most 12" and get some lateral motion. Sounds weird but I'd love to get my arm off my arm pit! I'll have to be in a partial body cast for 6 weeks. Any helpful hints on how to cope with that? Not to be indelicate but I'm generously endowed and can not figure out how or where "they" will be supported. Anyone had this? Thanks, Kelly(F49RTBPI)
EllenB
Posts: 604
Joined: Sun Jan 12, 2003 1:22 pm

Re: Jacksonville Mayo

Post by EllenB »

Hi Kelly,

I can't speak to your specific question but my son John had gracilis muscle transfers at Mayo Rochester, and during the recovery period it was OK for him to move his arm out a finger's width from his body to wedge a washcloth up in there. Re your question, if you don't hear on the boards just ask the doctor - you know you're not the first with that question!

We're eager to hear more about your experiences at Jax Mayo.

Take care,

Ellen
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