I just want to say to Lizzie, that I don't feel I was disrespectful to the original poster. I don't want to go 'round and 'round doing a 'this one said' and 'that one said' on this forum. It's never my intention. If you re-read my post it simply says that this treatment wouldn't work for our child, I applauded the poster for bringing this information to the forum, and I only wished that we all be sensitive to the issue of different opinions. Nothing critical from me.
Best wishes.
Tanya in NY
Amber's Mom, ROBPI, 3 years old
surgery not always best, botox can be harmful!
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Tanya in NY
- Posts: 935
- Joined: Mon May 03, 2004 10:51 am
- Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
- Location: NY State
- Contact:
Re: surgery not always best, botox can be harmful!
Tanya in NY
Amber's Mom, ROBPI, 13 years old
Amber's Mom, ROBPI, 13 years old
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Re: surgery not always best, botox can be harmful!
Ok , i nevrer met randy clark, paul st john is who we saw. i heard of him through THIS board and heard great things. the mother was soooo upset of how the people treateed her that i actually talked with her over the phone. i at the time was busy driving to three states for advise about treatment of our bpi 2 yr old never surgery b/c we got to a bpi specialists farely late b/c local docs advises othervise. anyways i blew the woman off too. after the visits i was appualed at the suggestions. / we still have one more comming up/ anyways i rememberred that woman so i asked our pt about paul st john. she is a trained pt who actually took one of paul st. johns classes! so i was convinced! he did massage the muscles in the neck, back & shoulder& pec. my son was so lose afterward. this morning he got a little tighter over night but he is definetly loser. this guy is my alternative to BOTOX! i was told that botox can cause allergies? it may or may not but i am not taking a chance.
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Re: surgery not always best, botox can be harmful!
and, i totally have the UPMOST RESPECT for anyone who chose surgery. we have not ruled it out. i just feel that i must rule out every other possible route first.
Re: surgery not always best, botox can be harmful!
this seems to explain the therapy & i am positive that this therapy is not only used for pain.
http://www.neurosomaticeducators.com/
http://www.neurosomaticeducators.com/
Re: surgery not always best, botox can be harmful!
sorry, also the original poster said she went for range of motion not pain. and i think every parent would love to hear how to encourage range!