Horner's Syndrome
Horner's Syndrome
Is this only linked to severe injuries? Did you notice anything early or when did symptoms start? Just curious...
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admin
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Re: Horner's Syndrome
it depends on the area affected. i believe c4? i thought my son had this, he just has a slight smaller eye on the opposite side and nothing to do with it sice my other son has this and also their grandmother.
Re: Horner's Syndrome
I thought it was c5. I could be wrong, though. Javier has it, and it is most apparent when he is tired and sick.
Marlyn
Marlyn
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parent needing help
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- Injury Description, Date, extent, surgical intervention etc: 03/28/2000 OBPI. rc5-6 rupture, rc7-8 avulsion rt1 stretch. L humeral fx lc7 stretch
- Location: Huntington, West Virginia
Re: Horner's Syndrome
Has to be at least c5 but it sems to me like our neuro told us it was t1 and indicated one of the more severest forms of the injury. I will ask out OT / PT today for sure. But it was obvious right from the start. That one eye was slower in opening and didn't open quite all the way for a long time. Also the affected side of her face and scalp stayed red and he did not perspire on that side. Even now, after over six years it is till there, like the other parent said, when they are tired or sick, or even over heated or upset in our case. it is c5/6/7/8 and t/1 injures (ruptures on some, avulsions on the others) at our house and a c7 stretch on the opposite side but no Horner's on the stretch side.
Christy & Katie Chapman
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admin
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Re: Horner's Syndrome
I think I might just be paranoid. But Jacob's right eye looks a little different than the left. It's not droopy though-just a little different. It could just be the way he is. I've studied his pupils pretty carefully and they look pretty normal...the same dilation and everything. I know that Jacob's injury is not severe. He has recovered all movements except for supination when his elbow is bent. He will supinate ocassionally when his arm is straight.
So the Horner's has to do with which nerve is damaged?
I'm sure I'm being paranoid, but I've been through so much from him not breathing normally at first and BPI that I'm terrified of something else happening.
What did you notice about Javier's eye?
Shari
So the Horner's has to do with which nerve is damaged?
I'm sure I'm being paranoid, but I've been through so much from him not breathing normally at first and BPI that I'm terrified of something else happening.
What did you notice about Javier's eye?
Shari
Re: Horner's Syndrome
His right eye opened slower in the morning. It looks pretty much like a person with allergies. Just a little puffy and when he smiles his right eye is smaller. It was very noticeable when he was younger.
marlyn
marlyn
Re: Horner's Syndrome
The other thing I've noticed is that when he's asleep-sometimes, not always, that eye doesn't close ALL the way. It's open just a tiny bit. I thought it was weird, but I don't know if this could be related to Horner's or not???? Anyone know?
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jennyb
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- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: Horner's Syndrome
I have a severe tbpi and I have Horner's. I think it's to do with damage to T1. The funny thing is, both my father and my daughter have slight Horner's too, and always have had. Neither had eventful births. It's only really obvious when they are tired, whereas my horner's is always there-it's my pupil that makes it most obvious.
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marieke
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- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
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Re: Horner's Syndrome
Hi, I don't have Horner's (though with all I have, could have gotten). I have done some searches for this before, but I have found this web site that explains all the possible causes (or rather lists them) and at waht level or place the nerve(s) are affected. It is very "medical", but most sites are I have noticed, those that aren't are too simple and do not give enough info!
http://www.uwo.ca/cns/resident/pocketbo ... ndrome.htm
Take a look at this site, as I have said, it is technical (talks about 1st order/2rd order/3rd order neurons or pre- and post-ganglionic) but basically you are all right. Trauma to the cervical area will do it, especially at T1, which is why (most likely) not ALL OBPI/TBPI kids/adults get Horner's.
I people want specific help with understand the web site or another one they have looked at, email me. I don't mind helping people deciphering it... I have a strong medical background (and even more so now for those of you who know me, LOL).
Marieke (LOBPI)
http://www.uwo.ca/cns/resident/pocketbo ... ndrome.htm
Take a look at this site, as I have said, it is technical (talks about 1st order/2rd order/3rd order neurons or pre- and post-ganglionic) but basically you are all right. Trauma to the cervical area will do it, especially at T1, which is why (most likely) not ALL OBPI/TBPI kids/adults get Horner's.
I people want specific help with understand the web site or another one they have looked at, email me. I don't mind helping people deciphering it... I have a strong medical background (and even more so now for those of you who know me, LOL).
Marieke (LOBPI)
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annedefiance
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Re: Horner's Syndrome
Ben has a moderate-severe injury and Horner's. We noticed it right away and have noticed other little changes. Like others the fact it's smaller is more apparent when he's tired or sick, but it also shows up in pictures. Then a year ago, we noticed that his right eye is still blue and his left eye is a hazely-green (he's ROBPI). We have the optometrist keep an eye (no pun intended)on it and have his eyesight checked once a year. So far, it's all good 